4 weeks post treatment

Sounds like par for the course, most of us have been in the same place ...fatigue is normal after the harsh treatment we have endured...things will get better it just takes a bit of time, try not to suffer in silence, ask your oncology teams for adequate pain relief and make sure you have enough to cover you for weekends and bank holidays...the PEG tube is a pest but it is a lifesaver.

Hi Lotty. 
it’s just time. Radiation fatigue will hit you for months yet so just go with it. Rest when you need to. 
My tongue ulcers took a good six months to heal. 
Do what you can. Try different foods and if something doesn’t work try again in a few weeks time. 
Milky things seem better than soup ( especially tomato…. Ouch!) poached eggs don’t need much chewing. Start with those. 

Thanks Michael. 

Im just checking its par for the course. Got plenty of pain relief and I must admit I try to do without, I don't know why, ive always been one for putting up with it, stupid I know.  But thats just me. Feel like im back in nomans land until I start seeing followup appointments in a few weeks 

Thank you

Yes ...pain relief unfortunately comes with its own little complications...more for us to deal with ...12-16 week follow up seems like an age away but it will soon come around...The PEG tube should come out around the same time.

good luck

Hi Lotty it’s all par for the  course it’s early days even though yourmight not think it is read this article it might help  

written by a consultant at Leeds cancer centre  

my ulcers were around 12 weeks before they went  I used gelclair l was  and drinking the ensures orally even though they stung I knew I needed the calories to aid recover  you’ll get there we all do  remember it’s a marathon not sprint  radiation fatigue is real I became very good at power naps listen t9 yi7 r body don’t fight it and gentle walks help  not too far but increasing the distance daily helped me 

pain relief is vital I was on it for 3 mjnths then did a slow withdrawal  it’s a big part of gett7ng better please don’t suffer  

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

Any questions just ask 

hugs Hazel 

Thanks Hazel 

I was thinking of getting gelclair, I use gelx which the hospital gave me ,is it the same type of product.Or has it a different use?.

When I finished my treatment and head and neck nurse said that my symptoms would last about 2 months, and I was thinking,  according to what I've read on this forum, id be very lucky if that was true. And I remember my oncologist saying around 8 months recovery.  

Was your speech effected by the ulcers ? 

Tracy x

Your post made me cast my mind back 2 years.  Sounds all so familiar aside from the mucus which I did not really get bad.  It takes time.  You will get there.  I've no patience and am thus a bad patient!  But I've learned that it has to be given time to heal. 

Hi Tracy. No my speech was ok I remember if I was talking in a group my voice would get tired. 
the gelclair  I don’t know if it’s the same all I know is it’s expensive around £40 forv7;days use age hence why they don5v like to prescribe it. Gelclair  comes in sachets and you can use u5 neat it dilute and rinse your mouth wiy( it. You can’t eat or drink within 30 mins from memory I did find it helped. . 
my tongue even now spwhere I had radiotherapy intensely right side is still jelly like but I don’t notice it unless I look. 
hugs Hazel