Last day of treatment

Sounds familiar, a bucket was my best friend for some time....PEG was a pest but a lifesaver, kept the area sterile but I still had some PEG site  infections... treated with antibiotics, advance and rotating the PEG daily is not easy, make sure it isn't too tight afterwards, chemo can certainly compromise our immune system. 

Hi Lotty well done Tracy on getting through treatment .remember recovery is a marathon not  a sprint some of us quicker than others .Take it one day at a time.  one step at a time. The sickness from the chemo should settle down if ut hasn’t by Monday give your cns a ring see you can have string anti sickness meds. There’s lots of them ti choose from we are always started in the cheapest. A friend if mine had 8 different Ines until she found one that controlled the sickness if you're in opiates you should  be taking laxido or similar daily to keep regular. I remember I slept a lot  the first 2 weeks. It was feed slept oral hygiene repeat. The mucus will go I used a nebuliser at least 6 times a time to keep,it loose and often pulled out literally with my fingers. Alain keep an eye on your peg  if yiu think it’s infected callm111I was ng tube fed so didn’t have any real issues. 

Hugs Hazelmx

Try adjusting the PEG feed rate, I had bloating/sickness problems until I slowed down the rate...fed overnight by pump...a bit of a nuisance as I set it to finish at 4am which gave me a few hours of decent sleep... once I got into the routine it was OK.

Thanks Michael, had to have a new one fitted 2 week ago as the balloon burst. It was ok up to this week,  but cant understand why stomach is swollen but im taking in less . Then again I've been pumped with steroids havent  I .

Thanks 

My steroid was dexamethasone... hiccups and bloating amongst were side effects I had to deal with... not an easy time for you... but it will not last forever and the treatment has a 90%+ success rate... good luck.

Hi Hazel. Don't think the pegs infected as I've had that at the beginning of treatment.  They've put a slightly  smaller one in this time, I think its more from the agitation of retching and vomiting. I've got cyclizine as the others didn't suit , but I don't think they're as strong as the ondestron, ive been taking that  for the 3 days post chemo but they upset me as they've  lactose in them and im intolerant.  Such a pain. 

Im not using  the oromorph anymore as I can cope on the paracetamol luckily and difflam.its not so much the pain its the awful mucus like you said . Its like flippin elastic. Mouths sore but not unbearable. It was more painful  week 3/4  to be honest. 

Thanks x

Yes thats exactly  how I've been,  ive been given that too. Hopefully it'll start to ease off 

Thanks 

You’ll get there the mucus goes as quickly as it came honestly. I was prescribed carbosistine around week z4 of recovery I can’t say it really did much apart from thin it. I woke up one morning and it had gone but replaced with dry mouth which is another side affect that plagues many of us for a long time. Hope you soon get sorted. 
Hazel xx

Im not using a pump. Just manual  myself during the day. Im slowing down the rate of feed but find as soon as I've finished it is not long till next ones due, to get enough in a day 

Tracy