Hello,
I've posted a few times on behalf of my partner. It's been a roller coaster these last few years. My partner was diagnosed with head and neck cancer (HPV 16) in 2024 after two years of pain which was dismissed as temporal mandibular pain...30 sessions of RT finishing October 2024. January 2025 clear of head and neck cancer, however areas in hip and rib showing concern....biopsy showed secondary metastatic bone cancer from HNC in hip and rib. 2025 radiotherapy to these two areas to slow progression...worked in the short term but then started to grow and showed cancer in spine too. October 2025 started immunotherapy to slow down progression of disease (palliative ) (which had also returned to the lymph node in the neck) as told not curable...PET scan since starting immunotherapy in January has unfortunately shown the disease had increased in the size of tumours in hip and rib, spine tumour shrunk, lymph node in neck same but new lymph node in chest diagnosed. Immunotherapy no longer recommended but now looking at chemotherapy (palliative) it is news we had been dreading plus the idea of chemotherapy was not what my partner had ever wanted. They've now mentioned gentler chemotherapy which I understand is less toxic and therefore less side effects...we are to discuss this with his oncologist in 2 weeks. Has anyone else had this form of chemotherapy and if so, how did they get on with it? We have a big holiday planned in May going away for 3 weeks on a long haul flight and now I'm concerned we won't be able to enjoy a long awaited far distance holiday.This new development is all very upsetting .
So sorry to read how things have turned out.
gentler chemotherapy
Do you know what the drug is?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Dani, as yet I don't know what drug they'll use. When they mentioned chemo last week they mentioned Cisplatin and Capecitabine, but now they mentioned gentler chemotherapy I'm not sure what they'll use.
I hope you can both manage to get away. Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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