2 years on

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Well I've reached the 2year post surgery and post RT point and all was going well untill yesterday. Usual 8 week check up at Addenbrooks and my consultant has seen some changes on my tongue. So its biopsy time again and possibly back on the treatment merry-go-round. Biopsy is in 2-3 weeks so it's just sit and wait and worry now. I was used to the sensative tongue, crap taste etc and now it feel like the brakes are on. My tounge has been sore the last few weeks,  kept it to myself fearing the worst not wanting to worry family and friends. But hey ho it's out there now, so here we go again.....can't wait

  • So sorry to hear that especially as you reached the two year mark. Was your tongue very sore or did an ulcer appear

  • It got very sore over Christmas, there's a small white patch appearing on the site now 

  • So sorry to hear that your tongue is not playing ball with you. At the moment it must seem overwhelming especially the thought of potentially more treatment. Fingers crossed that the biopsy turns out to be clear. I felt much the same way when I got a second occurrence of jaw cancer. I felt I could not go through more treatment but I hunkered down and did. Once things were underway It was not as bad as I thought it would be although it was another big op and more radiotherapy. You just do what you need to do. My treatment was successful although since then I have had a third occurrence and another successful op. Here I am now living a very happy life 3 years since that last op and looking forward to many more years. Just hold in there and do what you have to do. I have everything crossed for you that things will turn out positively.

    Lyn

    Sophie66

  • Hi  Sophie,

    Thanks for your reply, I'm sure it will sort its self out m. It is onwards and upwards must admit I'm not looking forward to more treatment but we shall see. It's the local anaesthetic needle that scares me more Laughing 

  • Hi As yo7 know the waiting the worst part.  It’s always best to check as the earliest anything  is found the easy to treat. Try to keep busy box sets a good book. Keep off dr Google stick with us on her. Remember biopsy rukes out as well as rukes in. Hugs Hazel. X

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/