First baseline scans after treatment ends

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Good evening,

I finished my Chemoradiation on 03/07 and after a bumpy journey. My MDT have arranged for CT neck abdomen and pelvis 6 monthly with contrast and MRI neck 3 monthly with contrast. 

I'm needle phobic and claustrophobic as I'm sure a lot of people are so I do have diazepam for the MRIs. 

My questions are;

Has anyone had follow up scans without the contrast and if so are there any implications? 

Does anyone have any tips on how to deal with the scanxiety? I'm going to the new forest in between both scans this week/ next week and I'd love to switch off. 

My surgeon gave me a thorough once over and has written to me to say he couldn't see any signs of recurrence which I remind myself but I suppose as it's my first ones I'm finding it a bit difficult.

It gets a bit easier each time does it? 

Thank you all again Pray 

Kellie x

  • Scans and reviews are always a bit nervy, it does get better, just something we have to live with, focus on enjoying your break in The New Forest.

    We have no control with the scan results so no point in worrying about them.

    Michael

  • Hi Kellie,

    I would have thought that a scan without contrast would be of little use to the reporting radiologist.  The contrast is there to highlight the bits that may otherwise remain difficult to see. 

    It seems each hospital has a different protocol for follow up.  I had a PET/CT at 3 months and thereafter only physical & nasaloscopy. 

    I had a CT this morning but that was too look for late effects from the CRT on my hearing.

    On a personal level MRI & CT don't worry me.  However the waiting for the results can be a stressful time.  It's a good idea to go away and keep your mind busy with nice things rather than worrying about endless possibilities. 

    Peter
    See my profile for more details of my convoluted journey
  • Hello Kellie

    I used to have a fear of needles, so cannulas and blood tests were very challenging for me at the beginning of my treatment.  I had several CT scans, and a PET/CT scan, and they all required a cannula for the contrast.  However I found that my fear got easier to deal with as time went on.  12 years later I can go for a blood test without a second thought. 

    I found that the best way of coping with scanxiety was to find something pleasant to try to distract myself with.  A trip to the New Forest sounds ideal for that.  

    Margaret

  • MRI at 12 weeks and PET/CT at 16 and that was it. Like peter I found waiting for results more difficult so just kept busy. I agree you need contrast so just make sure your veins are in good nick. Make sure you’re well hydrated and take a hot pad to put over your arm to keep them prominently at the surface. The hospital may even provide a hot water bottle. I know chemo units do. If the radiolographers are having trouble ( mine did) insist they find you an anaesthetist. They can find veins blindfolded. Good luck. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

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