base of tongue cancer

Susie said:

Is this normal half way through ? I have tried steaming over a bowl and the macmillan nurses have gave me a nebulizer but i think im meant to put a capsule or something into it ..Any tips would be much appreciated...Do i give up trying to talk ?

Yes all normal. The mucositis is the ulaceration and inflammation the RT causes. Just keep your mouth as clean as you can. Salt and sodium bicarbonate mouthwashes are good. The nebuliser is to try to relieve the sticky saliva and plain boiled water is perfect for that. You don’t need any capsules in it. It’s just to give you moist air. 
I gave up swallowing but talking was ok. 
Up the pain relief and take it by rote to stay ahead of the pain. 

I had long acting morphine twice daily and oromorph and paracetamol alternating every two hours. I fed by pump overnight. I must say it was a challenge as I was very very tired but the pain was manageable and I dozed a lot 

Thankyou Dani ,i thought i had to put some sort of capsule into the nebuliser so i will try that now, when i try and speak it feels like im clogging up ( sorry hope you arent eating) i was speaking to a neighbour for more than a couple of minutes and had to cut it short as i was feeling sick..I have Morphine but after taking it yesterday i felt so groggy i think i wont take that now till i need a sleep.i will keep putting the liquid paracetamol down the rig..I have just got to say to myself half way there and keep with it as there's light at the end of this dark tunnel. Many thanks for your advice xx

Hi Susan all perfectly normal. I had a nebuliser I was given saline sachets. But I also used plain cooled boiled water. You   must boil the water first to get rid of impurities. Never use aroma therapy stuff in it. 
I nebulised up to 6 times a day. 
Keep on top of pain relief by rote that way you’re not chasing  pain remember laxido if you’re taking opiates as constipation isn’t fun on top of everything else 

 hugs 

Hazel