Week 7 of Recovery

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Hi everyone!  My husband's thrush is better, but not sure it is completely gone.  He will be calling the nurse today to discuss that and his lack of saliva.  He is having such a hard time with dry mouth and throat now that things he ate easily before are giving him trouble.  He did well with milkshakes before and had one last night, but it hurt his throat.  He wasn't sure if it was the temperature or the thickness.  This whole thing is like a difficult puzzle to figure out.  I am back to tracking his calories again as I don't want him to lose anymore weight.  He is using the salt/baking soda rinse often and completed 10 days of nystatin.  On the bright side of things, we had a great day yesterday planting flowers and completing spring projects.  One day at a time! Thanks again for being here!!

  • Hi

    saliva takes a long time to normalise. A pocket spray of water is better than constantly sipping water which washes any saliva away. Using a tiny sip of warm tea as a proxy saliva when eating helps to chew and swallow. 
    Have a look at acupuncture. It helped me. There are two posts about it in my blog. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I'm 18 months down the line and no saliva. I use oralieve spray and I buy xylimelts  tablets to stick  to gum overnight. As everything tastes bitter there are lots if foods I cannot eat, so I still take one fortisip a day to get the right vitamins.  I don't expect things to improve any further. But saying that I am fine and enjoying life and grateful for the treatment and on going care I  receive. 

    1. Martie
  • Biotene and Gelclair were given to me for mouth and throat issues, both worked well, also Difflam and Oramorph for pain

    M

  • Hi dry mouth can be a long lasting side effect at year 7 I still get dry mouth at night time and use  xyimelts. As Dani says a tiny sip of  warm tea /water  / coffee as a proxy saliva can help. A spray bottle helps as drinking constant washed the saliva away but you still need 2-3 litres every day just use spray bottle in between. It will improve but takes time. During daytime in around 95% ok and no longer need spears ie constant water. It’s really early days fir him at the minute. 
    Auricular acupuncture helped   kick start my saliva it doesn’t work for everyone but worth a try.  

    Hazel. 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/