Setback

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My husband is now 5 weeks post radiation and we just returned from a week of vacation in Florida.  We had a great time and he rested everyday for a few hours. He ate very well too. This morning he woke up feeling weak and not well overall.  He has been making such good progress with his recovery and this seems unusual.  I'm wondering if he overdid it and has exhausted himself?  I know everyone says one step forward two steps back.  What are your thoughts?

  • Jet lag and overtaxing himself?

    I know we are all different but I was on morphine still at 12 weeks. 
    He is not out of the clutches of radiation fatigue either and it might be an idea to get his thyroid checked too 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • He will have bloodwork to check his thyroid in June.  I'm hoping a good amount of rest will find him feeling better soon.

  • I agree with Beesuit, could this be jetlag? 5 weeks is still very early stage on his recovery journey therefore it is possibly harder for your husband to cope with the jetlag. A lot of us also suffer from fatigue for quite a while, not uncommon to feel exhausted. I think it is amazing to have managed to go away and eat well . He is doing incredibly well. However , of course, if you are concerned, you could contact your GP or his medical team (oncologist? ). 

    Fab1

  • He doesn't want to contact his doctor yet(he is a bit stubborn).  The flight was only 3 and a half hours.  His taste is coming back slowly, but he doesn't feel hungry often.  He makes himself eat. Thanks for your kind words!

  • Hi Rara2, I wouldn't say it's a setback, it's more likely that he has over done things, 5 weeks post treatment is very early days, his body still has a lot of healing to do. Recovery can be a long drawn-out thing, and his body needs the time to heal itself.

    Ray. 

  • Hi agree with others  hey ksgvand time difference. I fire tj Spain week 8  that was hard enough. We were here for 3 weeks in our own place and j chilled at lit. Radiation fatigue hit me around week 12,

    As patients we think we’re invincible and I came away as it was my hubby sc 60 th I forced myself it dud me good but ur was tiring. Let him chill and rest. 
    it’s early days 

    often 2 steps forward and 1 bsck 

    hugs 

    Hazel. X

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Evening all.

    My chap had a TL in December and is now four weeks post RT.

    His H&N team referred him to Active Together sponsored by Yorkshire Cancer Trust.  The programme is run by a MDT made up of medical professionals from various institutions, based at Sheffield Hallam university.

    On Monday he was assessed by Jenny, ex A&E with experience of laryngectomees, and ran him through a series of exercises before inviting him to attend a weekly class for 12 weeks.

    We went today and he completed a sort of gentle circuit training for around 35 minutes.  I was worried sick as apart from some pretty slow walks, this is the most he's pushed himself in 7 months!

    I've kept a beady eye on him all day since we got home and constantly asked if he felt knackered, pain etc.  He assured me he felt fine and actually slept less today than when the fatigue kicked in after treatment.  His appetite was pretty good, too, but I'll know better how he's fared in the morning.

    I wondered what your views are on this regime so early in the recovery period?  I honestly thought he'd be 'laid up' for an absolute age.

    Gill xx

  • Sorry.  Jenny is ex ICU, not A&E.

  • I wondered what your views are on this regime so early in the recovery period? 

    I would say he should go for it. I was told that through my treatment and after it exercise was important even if it meant a slow turn round the garden. I did this even in the two weeks after RT ended even though I was a walking disaster. I'm sure it helped me recover. I know Hazel was in Spain 8 weeks after but she was on familiar territory...a second home. I wouldn't have had the mental fortitude to be away anywhere unfamiliar but by 8 weeks I was slowly walking the dog round our fields. 

    I rested when a wave of tiredness hit me...it's common but doesn't last long

    I was worried sick as apart from some pretty slow walks, this is the most he's pushed himself in 7 months!

    My first husband took six months to recover after his TL but then he had RT before which failed. He went back to work as a press photographer quite successfully 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you, Dani and I'm relieved you think it's a good move as you're fully aware of limitations whereas I'm not.

    I think he was pleased with himself after his efforts and I was full of praise towards him.  I snuck up to check a while back and he's sleeping fitfully.  He's due to have his RIG removed on Tuesday as it's been redundant for five months due to his continued eating and drinking since he passed his swallow test.  He's pretty chuffed about that.

    Wow!  Your first husband must have been an achiever and I did read that it wasn't the TL that did for him.  Such a shame after everything he'd endured.

    Gill xx