Week 4 Recovery

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Everyone is right about having to be patient with recovery.  My husband's mucositis is his worse side effect right now along with his sore throat.  Does anyone have any suggestions to help with the mucositis?  He hacks and coughs to try to get rid of the mucus and it is affecting his sleep.  He does the baking soda and salt rinse after every meal and uses steam 3 times a day to try to loosen it.  Are there sprays that are helpful?  

  • Caphosol worked for me, Mac nurse advised that it would loosen tough mucus, had to have some sleeping tabs also, decent sleep is essential to aid recovery.

    M

  • What’s happening is that the watery portion of saliva has been hammered leaving the mucous part intact which is why everything is so sticky. He can try to dilute it and that’s why steaming or nebulising can help as can frequent tiny sips of water. A water spray might work. 
    The good news is that the damaged cells do repair somewhat and it does get better and often very suddenly. 
    Some people get help from a drug designed to thin mucous called carbocysteine  

    By the way sticky saliva isn’t mucositis. Mucositis is the intense ulceration and inflammation you get from RT damage to the mucous membrane ( moist lining) of the mouth and throat. 
    What your husband has is just sticky saliva. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Rara . I had carbusistine to help thin the mucus it helped a little. But the key to recovery as others have said is sleep hydration and food. Yiu might not think it it but 4 weeks is still early I liken recovery to a marathon nit a sprint and some weeks 2 stela forward and 1 step back. There no magic cure sadly as Dani says iur saliva glands take a battering and even niw at 7 years I still need xyimelts at nughtas my mouth goes really dry he will get there just takes time. Hugs 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks for the explanation.  When did it get better for you?

  • When did it get better for you?

    Around 8 weeks after though I didn’t suffer too badly 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi, alongside things that others have already mentioned, I thought it was worth sharing that a few days after I finished treatment one of my RT team suggested I try sparkling water... it was an absolute game changer for me :-)