Metastatic Bone Cancer

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Hello, 

My partner had his 3 month post RT PET scan in January and was given the all clear which was brilliant news. I may have already mentioned this in a previous post but can't find it. Anyway, he had to have a biopsy on his hip 3 weeks ago as they found 2 hotspots on his hip and rib in the first PET scan last year and again the same spots in his PET scan in January.  We were told that it was unlikely to be related to his head and neck cancer as that was very rare to go to the bones. They were thinking it was more likely from his previous prostate cancer which he'd had in 2013 and was all clear from that and all psa checks were negative.  Anyway, he had his results from his biopsy yesterday and we were unfortunately told that it was infact metastatic bone cancer from the head and neck cancer. Not curable but manageable.  They are going to start him off on 5 doses of RT and rescan again in April. He's being brilliantly positive and upbeat about it all. I think he's just so relieved that he doesn't have to endure 6 weeks of RT on his mouth! He also quite rightly says, many people live for years with secondary cancer so not point wallowing and to get on with living. Has anyone else got a secondary from head and neck cancer? 

  • Hi. Yes I remember your earlier post a couple of months ago. So sorry that it’s metastatic HNC. Has immunotherapy been suggested? We have a few forum members on IT for distant mets. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • ahh iam so sorry to hear this and well done staying positive xxx i was wondering if this could happen iam worried as i have pain in my bones had an xray thats has show osteopenia never heard of it til now but today got an appointment for a bone d x something or other my blood results have all come back abnormal as well not. 1 thing in my bloods came back at a normal level so was a tad worried about bone cancer finished treatment 5 months ago and all this bone pain has only started since treatment finished i wish u all the best and so sorry you has this crap news stay strong xxx

  • Hi like Dani remember your earlier posts. So sorry that he now has metastatic hnc. The radiotherapy hopefully will give him some relief. Has immunotherapy been mentioned? It is giving good  results for some of our friends on the forum. 
    All you can do is be guided by your hubby.  Sending hugs

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • bone d x something

    A DEXA scan. 
    Cisplatin can reduce calcium levels therefore impacting bone health. 
    I had SI pain that I couldn’t get on top of. Bone mets are exceedingly rare and Other half’s partners is very unlucky. Nevertheless it’s worth checking out. 
    I paid for a private MRI. I’m just old. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • iam to claustraphobic for m r i scans they have to sedate me lol so rather avoid them unless i really have to then i have to be sedated lol x

  • i did have crsiplatin was ment to have 3 lots but did not have the last lot as i was to ill x

  • I don’t think my head went into the tunnel when I had hips and pelvis done.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • i did have crsiplatin was ment to have 3 lots but did not have the last lot as i was to ill x

    There is also age and oestrogen status  to consider. 
    Im now on HRT at 74 years old, take Vit D all year round and eat plenty if calcium rich foods. Resistance exercise is good too. I do walk but that’s about it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • i had my knees done couple years ago and that come up near my chest almost and i only just coped with that they found i had something on me knees nothing to serious but it was xrays that picked up my osteo arthritis in my knees after the m r 1 scan and just had a pelvis x ray thats shown something in the right hip and the left femur which is where the pain is x

  • i walk a a lot and iam 57 i came off h r t due to it giving me non stop headaches x