Voice gone

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Hi. My husband had nasopharyngeal cancer stage 3. Just finished chemo and starting chemoradiotherapy Monday for 7 weeks . Good results so far as to the tumour shrinking,  was 4 plus cm, but his voice seems to be getting worse to the point where he can hardly speak now. Am quite worried because he hasn't spoken properly since October 24 and iv even forgotten what his real voice sounds like now. He won't address the problem as he is struggling with the whole issue and he seems depressed even tho treatment is working. He is not coping with side effects very well and now I'm struggling to cope as well. Has anyone's voice returned after treatment or is this the normal now. His doctor just say he's not sure yet.

  • He won't address the problem as he is struggling with the whole issue and he seems depressed even tho treatment is working.

    There is nothing to address. He just has to go with the flow. The next three months  are going to be pretty ghastly, I'm afraid. 

    Do ring the Macmillan Support Line. there is free counselling available via BUPA which might help.

    Do you have a Maggie's near you? Both of you would benefit from visiting. They are great people there.

    Has anyone's voice returned after treatment or is this the normal now. His doctor just say he's not sure yet.

    Most people do speak again. I think they doctors never give anything away...they can't 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi As Dani says you can onky go with the flow. He’s going to be frightened I know I was. It’s fear if the unknown our treatments hard it in an extremely sensitive area and we get zapped and chemicals put into us. But remember the vast majority of us come through it and 7 years later I’m still here. I have a friend who we met in treatment like me he’s 7 years for nasopharyngeal cancer and he’s back working g in a building site his voice is as it was before maybe a little hoarser. 
    Take time for yourself I made my hubby go out every day 2 reasons gave me a break and him a break from me

    go for a coffee with a friend or a walk 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thankyou Hazel. I think that's what we need , a break from each other now and again. It sort of takes over life if you let it xx

  • Hi Lynne It can do hence why I made my hubby go out to see a friend only across the road but gave us both space. I’ve admitted before and will do again sometimes I wasn’t very nice to my poor hubby while I was in treatment. We’ve been married now over 45 years and we don’t argue never have done but we ,well me had words once or twice. John bless him didn’t react he just let me rant .Its stressful and frightening but we got through it. 

    I also found it easier for me to go into the spare bedroom that way if I wasn’t sleeping  I didn’t disturb him ,John was my rock he drove me he took me everywhere he cooked cleaned washed ironed  shopped, which left me free as he said to concentrate on treatment and more importantly recovery. As it’s a marathon not a sprint. Any questions  just ask someone’s always around to help. 


    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thankyou Hazel. I think that's what we need , a break from each other now and again

    I moved into the spare room to give my husband space. 
    I lie! It was to give me space. There were times when his “looking after” me verged on the manic so it’s worth considering that the patient may need the space too

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Too true meant I could watch crappy  TV without being disturbed. Lol. Made it last 5 months as well. took ages to get used to the gentle snore that he makes!!!! 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • gentle

    You’re lucky! JoyJoyJoy

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Was being kind some night I can’t kick him any harder.!!But wouldn’t change him for the world xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I find a swift poke in the ribs does the trick Joy

    Mind you since RT I snore but he says ut doesn’t bother him 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Wow.. Bit harsh but thankyou for advice anyway