Hi everyone,
Decided I'd try sugar free gum to stimulate my saliva glands ( if I have any now) but it caused me a lot of eye watering pain and soreness. Just like most foods I'm trying!! ,I'm beginning to think that my throat isn't going to heal at all !! Just ending week 8 post RT , am I trying to turn this into a sprint? I called my CNS and she still is not overly concerned with my recovery and says we are all different. Unless I was showing signs of infection etc She was willing to get a doctor to see me but she said if I can wait till Monday as I'm due to see dietician and SLT then also.
I really am unsure whether I should be feeling this pain swallowing now or am I too impatient ?my oncologist says I'm on the lowest pain meds they offer. What I'm on -
Fentanyl slow release patch (lowest) every 3 days
10ml pregabalin morning and evening
5ml oxycodone 4 X day
30/500 cocodamol 4 x day
Difflam around 4-6 times a day
Plus bioxtra mouth wash to use when needed.
I was hoping to start lowering or stopping some meds ,but while my throat is still sore I'm thinking better of it !!
Thoughts anyone?
Still pretty early in recovery for most, I found Lidl's Jet sugar free (contains xylitol) gum pretty easy to take, I was still on Oramorph, MST and Cocodamol at the 8 week stage...by week 14 I had healed enough for a hernia repair op...
Still improving 20 months on...going for an Indian meal on Friday...going to ask for a couple of spoonfuls of Madras on a side plate....tempting fate?
I'm beginning to think that my throat isn't going to heal at all !! Just ending week 8 post RT , am I trying to turn this into a sprint?
Yes it will and yes you are.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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