Still waiting to hear from The Christie re the start of Carl's treatment.
One of the many things I am worried about is getting from Crewe to Manchester daily for a few weeks. I do drive but not in the best of health myself. If I manage to get hospital transport would I be allowed in the car/ambulance with him. I am trying to put my big girl pants on but I am so, so frightened by it all.
Louie
Hi Louie
I would think so as long as you advise hem at the time of booking. It might be worth asking at Maggies there is one attached to The Christie in case they do any transport they may have links with other charities that do. It’s scary if it helps I had lunch yesterday with a guy I met 6 years ago his cancer was nasopharyngeal and he’s as well as I am. We meet up twice a year to keep in touch.
Keep the big girl pants handy and remember you can rant in here It’s important you take time out for you as well if it’s only meeting a fiend for coffee I know as the patient I appreciated when my hubby popped out for a hour some times gave me space as well.
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I’m sure you’ll be allowed to accompany your husband. I had a journey that often took two hours each way for my RT. The hospital had accommodation overlooking The Mumbles where patients could stay if they lived too far away.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Louie. My husband has the same cancer t4n1m0 with skull base inclusions. He' is stage 3 and we found out after a year of doctors and clinics for headaches and sinus treatment, he has lost his hearing and voice at this stage. Halfway through treatment now just finished chemo and due to start radiotherapy plus chemo in Feb. Lots of appointments. Like you I drive but have anxiety about motorways etc. I managed to overcome this being his main carer but found out that his hospital do provide transport. I wish I had asked but good to know that its there if we need it. Its been a challenging journey so far with more to come but if I can help to answer any questions I'm here. Just found out about dentists and mask fitting plus his feeding tube which after 5 months was a shock to me but I'm better doing this day by day. That's how I cope but others like to look forward and plan. So am here. Lynnyloo x
Hi Lynnyloo. Welcome to our small forum. We’re all happy to help with tips. My cancer was tonsil but the radiotherapy treatments and side effects are similar
we all react differently do what you feel comfortable with with.
hugs
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
thank you Hazel. Louie. (my real name is Lindy). I will try to change it on this forum.
Trying to put my big girl pants on now. x
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