Husband been diagnosed with nasa pharyngeal cancer.

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Still waiting to hear from The Christie re the start of Carl's treatment.

One of the many things I am worried about is getting from Crewe to Manchester daily for a few weeks. I do drive but not in the best of health myself. If I manage to get hospital transport would I be allowed in the car/ambulance with him.  I am trying to put my big girl pants on but I am so, so frightened by it all.

Louie

  • Hi Louie

    I would think so as long as you advise hem at the time of booking. It might be worth asking at Maggies  there is one attached to The Christie in case they do any transport they may have links with other charities that do.  It’s scary if it helps I had lunch yesterday with a guy I met 6  years ago his cancer was nasopharyngeal and he’s as well as I am. We meet up twice a year to keep in touch. 
    Keep the big girl pants handy and remember you can rant in here It’s important  you take time out for you as well if it’s only meeting a fiend for coffee  I know as the patient I appreciated when my hubby popped out for a hour some times gave me space as well.

    hugs Hazel  

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I’m sure you’ll be allowed to accompany your husband. I had a journey that often took two hours each way for my RT. The hospital had accommodation overlooking The Mumbles where patients could stay if they lived too far away. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Many thanks for this Beesuit. 

  • Hi Louie. My husband has the same cancer t4n1m0  with skull base inclusions.  He' is stage 3 and we found out after a year of doctors and clinics for headaches and sinus treatment, he has lost his hearing and voice at this stage. Halfway through treatment now  just finished chemo and due to start radiotherapy plus chemo in Feb. Lots of appointments.  Like you I drive but have anxiety about motorways etc. I managed to overcome this being his main carer but found out that his hospital do provide transport. I wish I had asked but good to know that its there if we need it. Its been a challenging journey so far with more to come but if I can help to answer any questions I'm here. Just found out about dentists and mask fitting plus his feeding tube which after 5 months was a shock to me but I'm better doing this day by day. That's how I cope but others like to look forward and plan. So am here. Lynnyloo x

  • Hi Lynnyloo. Welcome to our small forum. We’re all happy to help with tips. My cancer was tonsil but the radiotherapy treatments and side effects are similar 

    we all react differently do what you feel comfortable with with. 

    hugs 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • thank you Hazel. Louie. (my real name is Lindy). I will try to change it on this forum.

    Trying to put my big girl pants on now. x

  • Lynny - I am so sorry you are going through all of this. Isn't it nice to be with others who are going through the same sort of stuff. Louie. (my real name is Lindy and I am going to change this with the online organisers. x