Still very early days post treatment (end of June 24) for me I know, but until the last week or so I'd found my mouth had really improved and was able to eat and drink almost close to normal - albeit spicy stuff was still very much off the menu.
However, over the past week or so it's like it's gone downhill really badly and mouth is as dry as it was months ago and eating most things is once again becoming a real chore.
Naturally, anxious me tells myself it's a sign that the cancer is on its way back although rational me tells me to remember that we should expect ups and downs as we continue on the road to full recovery.
The oral thrush I was told I had a few weeks ago hasn't really gone away and I'm still trying Nystan and Difflam for that but nothing seems to be improving that.
Guess what I'm asking, is this all still normal and just one of the troughs, hopefully soon to be followed by another peak? Or should I perhaps raise with the GP?
Hi, I too finished RT July this year and still suffer with dry mouth, washing down food with copious amount of water. Nystatin did nothing for my oral thrush I’ve had about 6 episodes of it now. Fl
onazole clears for a spell but it keeps returning. Had swabs done but they say it’s just a side affect and looks like I’m plagued with it for now. Hoping you get sorted and I’m sure things will looupxx
The oral thrush I was told I had a few weeks ago hasn't really gone away and I'm still trying Nystan and Difflam for that but nothing seems to be improving that.
Guess what I'm asking, is this all still normal and just one of the troughs, hopefully soon to be followed by another peak? Or should I perhaps raise with the GP?
Our thrush which is complicated by a completely deranged microbiome does not respond to nystatin. You need Fluconazole and probably two weeks of it.
The fungus thrives in sugar so try to cut that out. If you do eat anything sweet make it part of a meal and then rinse your mouth out with salt/bicarb. Then eat a few spoonfuls of live unsweetened yoghurt. Make that part of your normal routine even when you are better and you might be surprised how well your mouth feels.
I found a chlorhexedine mouthwash last thing at night but a half hour after brushing with Duraphat ( sls and chlorhexidine don’t mix)
Try it?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
