Pain meds

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Hi everyone ,

Just about to have my 14th RT and I'm struggling to eat now, swallowing is a gripe and a whine.im also getting annoying tiny blood blisters when I eat certain things. Taste is also a no go which doesn't help with trying to eat! What I'm asking is ,I think it's time to up the pain relief or is it still too early? My head's telling me to start using the RIG but my heart says keep trying ,but I'm getting down about it all now so a bit of advice would be good please?! What meds should I be asking for? 

  • My advice is don’t suffer

    There isn’t a “time” to do this you do it when you need to  

    Up your pain meds to cope with background pain especially and use your tube. 
    I didn’t swallow anything for six weeks. I’m great now and can eat well 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member

    Hi MarK

    My CNS was quite firm with me on pain meds, told me not to suffer unnecessary pain, guidelines were given on safe dosages... mostly for Oramorph....I certainly took the advice.... Started using my feeding tube as soon a my weight started dropping off.

    Difflam and Difflam spray were used bigtime 

    Take care 

    Peter 

  • Will ask today for something today . Thanks Peter

  • Former Member
    Former Member

    Eating?  I was told to use Oramorph 10-15 minutes before eating.... swirl it around the mouth/throat area to ease the swallow pain 

    Peter 

  • Will ask today for something today

    I was on oramorph every four hours with paracetamol in between. 
    When the background pain got too much and I was waking in the night for too ups I had long acting morphine twice daily. It was a godsend 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • The other replies you have had are spot on, don't suffer take as many meds as you need. My consultant asked me one day how the pain was, I said it's quite bearable, she said that's not good enough, she didn't want me to have any pain and increased my meds. Start using your RIG as soon as you need to, don't try to force feed yourself. 

  • Thanks Ray , was just upset giving in so soon. 

  • Don't think you have given in, you haven't. Your body is taking a battering at the moment, and it needs all the help it can get. You will get there.

    Ray.