Got diagnosed with MEC on roof of mouth. Had wide excision 6 weeks ago. Recovery for first 3 weeks was very rough.
went for results last week and told tumour removed but I only have a 1.5mm clear margin. Tissue was only removed. Beyond the 1.5mm is bone.
As 1.5mm can’t say if cancer gone or not in case some stray cells.
Given 2 choices. Leave it at that and 80% chance of no reoccurrence but may be some stray cells in the bone which may grow. I would then have Mapuche more intrusive surgery in the future and radiotherapy and pos in lump nodes.
Option 2 have further surgery to remove some of bone to see if there are any stray cells and get a slightly better margin if no cancer cells found.
Ups chances of no reoccurrence from 80% to 90/95%.
Decided to go for option 2 and ext surgery booked in in a week time.
Hoping no cancer cells found in bone as scared of what would be next step.
Originally told 1 op to resolve this but now onto number 2. Tumour was not visable on my scans but was there when they operated.
think I have made the right choice of the further op
think I have made the right choice of the further op
I think you have too. You can always have radiotherapy to hand should you need it. Hopefully not.
It’s good to have such an encouraging prognosis. Hugs
Hi I think so as well ,you can save radiotherapy for later hoping yiu don’t have to have it. Fingers x for you.
Best wishes
Hazel
Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
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