Update before treatment!

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Hi all, 

The last two weeks have been very full on with appointments.

He's had the Dental assessment and luckily didn't need any teeth out, of which Paul was over the moon with.

He's also had to have a carotid artery ultrasound scan and again that has come back okay, so something else we don't need to worry about right now.  He had his Gastric Tube Assessment on Friday and he is booked in for that operation on Monday 18th November.

We are now sat in the Rosemere Centre awaiting Paul's Mask fitting and CT planning scan etc.  

We will find out apparently today his treatment plan times so at least we can get the patient transport sorted for Paul.

We had a wonderful Saturday evening and Sunday morning spent with our closest friends in Peterborough for the last time this year and we have plans for when Paul is feeling better for a lovely big get together.  We both definitely needed this weekend I won't lie.

We are trying to finalise the next six weeks of how we can make sure Paul is fully supported whilst I have to work and my amazing daughter is coming up from Bristol for a couple of weeks as she works from home etc so she will be with him for week 3 and 4 and then it's Christmas week and I'll be on leave for all of that and then she's coming back for the last of his treatment and possibly for the two weeks after that as we know from on here that weeks 7 and 8 are going to possibly be even tougher so I definitely don't want Paul at home on his own. 

This forum is going to be a life saver for us and has already provided us with much needed help and support so we can't thank you enough. 

  • Hopefully all runs smooth Smileyvery best of luck, sending love and positive vibes your wayHeart

  • wishing you all the best, and I hope everything goes well for you...Thumbsup

    Loz (61)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • This forum is going to be a life saver for us and has already provided us with much needed help and support so we can't thank you enough. 

    Good luck. Give Paul a big forum hug from us all. Oh, and one for you too. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi LadyAH

    No teeth extractions is a welcome bonus....Keep us updated with Paul's progress...ask anything at anytime...always someone about....

    Take care and best of luck

    Peter

  • Hi ,

    I made the right decision and joined this great forum. Just started week 3 of treatment and the help you get on the forum is brilliant, always someone here to put your mind at ease .

    Best wishes Mark 

  • Sounds like you have a good plan worked out.  

    As to Paul being on his own in the weeks following treatment.  You may find that he is OK as he may want to sleep most of the time and providing he is coping, being on his own will not be a big issue.  My wife's mother was dying towards the end of my treatment and was really struggling for the 3 weeks post treatment until she succumbed.  I made it clear to my wife that she was to go to her mother and spend days and somethimes nights looking after her.  I was asleep most of those weeks and was managing to look after myself so it worked for us.

    Only time will tell how things work for Paul, but let us hope for the positive.  Stay with us and we will help you and Paul when you need us.

    Peter
    See my profile for more details of my convoluted journey
  • Just sending love & good luck to Paul & you

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Oct 2024 nearly 2 years all clear. See my profile for longer story

  • Sounds amazing planning and support in place AH, Paul's lucky to have you (I'm sure he knows thatBlush).

    But you also need to make sure you have support for you in place....I've been banging on about this for more than a decade now, so apologies to those long standing members for yet more repetition, but the patient is always surrounded by support through this whole horrid process; loved ones aren't, and often find stuff just as hard to cope with.

    Who gives care to the care giver?

    I know my wife found the whole thing much more of a challenge than I did on many occasions.....look after yourself x

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Hi Mike 

    Spot on....carers need  'me time '...the pressure that they face is immense and often goes unrecognised