Since my partial glossectomy in April this year I have seen the consultant once in early May. I was clear and follow up management and what to be aware of discussed
After 2 cancelled appt in the summer I spoke with CNS as I had a wobble!!! due to not being seen and they arranged for me to see someone else in department.
While she allayed my fears - I still have not seen the surgeon. So i was glad to receive appt in September for late Oct appointment. But today it has been cancelled. Third time!!
So it is now six months post operation that I have not been seen, While I had every confidence in my consultant I am now becoming rather disillusioned, plus spent several days last week with the burning tongue I have had is past.
Has anyone else experienced this in there follow up treatment? Should mention the agreed follow up was for 2 monthly reviews.
Has anyone else experienced this in there follow up treatment? Should mention the agreed follow up was for 2 monthly reviews.
Hi Julie. In my second year I wasn’t seen for 9 months due to Covid but I did have phone appointments
Are you able to speak to your CNS? Tell them your native tongue is sore and you need to be seen ( don’t be alarmed, burning tongue isn’t serious but telling your CNS your tongue hurts might get them moving)
I definitely think they need to keep an eye on you. xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
We are we fine thanks.
Stan is gearing up for a new half knew at the beginning of December
We are having to pay ourselves or wait 5 years!
xxx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
