Back to square one

NicNack said:

Has anyone experienced this?

 Not quite but I did have a hot spot on PET at 16 weeks. 
A biopsy six weeks later was clear. 
Are you saying the oncologist is overruling the pathologist? 
I would get some clarity on it so go back to get an explanation you can understand. 
Are they going to hold back on the dissection for a while? 

No not overruling I don’t think. Oncologist said it could be. Said could wait and see and that was a choice we had but feels a gamble 

NicNack said:

Said could wait and see and that was a choice we had but feels a gamble 

So is the choice repeating the biopsy in a few weeks? Or going straight to dissection. 

The choice was wait and biopsy or dissection 

Chose dissection 

What are you thinking? Would you have waited? We were prepared for PET scan to possibly be showing hot spots as hear about that quite a bit but this threw us 

I think I would want to know how extensive the dissection might be. I’d probably also put the oncologist on the spot and ask what he would advise if it was his partner. 
Then I would make my mind up. 
It’s a rotten choice. So sorry you are both pitched into this again. 

Hi I would do like Dani says and ask the question to oncologist what would he advise his partner to do. It’s not the same in any way but when we were discussing do I have the 3 rd chemo or not I asked my oncologist the same question. He gave me honest reply. 
it’s not  ideal  it also ask how invasive a neck dissection care they looking at ? 
hugs Hazel xx

Hi NicNack . So sorry to read your post. My husband had to have a neck dissection after treatment as his neck lump didn’t go down. He had the choice of waiting but his consultant thought it was the best decision to go ahead with the op. It wasn’t an easy op due to the amount of damage done by the radiotherapy but he is recovering well. His results came back as clear of cancer but he will never regret having the operation as he had the reassurance that no cancer was found. 

Hi Worrylo thank you so much for messaging, did he have a biopsy or was it just because of the size they did it. I remember your post and worries about the lump. 
I hope we have the same outcome  the ENT consultant felt it was better to be safe.

I really feel for him as he said this week was as good as he has felt and now more recovery. But hopefully it’ll be okay. What do we need to expect it terms of recovery? Although I know everyone is different x

His consultant said that the danger with a biopsy is that it isn’t a 100% guarantee of the correct results. So he could get a negative result in the sample but there could still be cancer present. He was in intensive care for a few days after but he has bounced back fairly quickly really. Feel free to message me anytime x

Evening all, 

I wanted to post an update …

My husband had the neck dissection as advised on 21st October. The operation went as planned and the ENT surgeon said that the lymph nodes didn’t look suspicious. He said there was a lot of scar tissue where we felt the lump. We were told 2 weeks for histology results.

He has been recovering well with some pain and numbness and obviously still very tired after treatment etc.

Yesterday he got the call to say that the histology found no cancer! It was indeed a false positive from the biopsy. So we are delighted and hoping that this rollercoaster is steady for a while. Back to the plan of 2 monthly checks with ENT.

Hope that this update offers some comfort to others in a similar position. 

Now to try and pull up the positive pants and live life to the full ️