Hi just some general questions seven weeks after finishing RT for stage 1 tongue cancer and head neck dissection..I was wondering if anyone wakes up every am feeling tongue and cheek swollen until they move it about and do their exercises it feels a little less swollen. No two days are the same. One day I look less swollen in cheek then few hours later I could feel swollen. I feel like I'm going two steps forward and four back. Is this all normal. My neck feels the same even though I do exercises continuously throughout the day. Does this settle over time. Any other advice would be appreciated. Thank you .
All this is normal. I promise.
I used to wake unable to speak because my throat was swollen with lymphodema inside. A cup of tea and some swallowing and jaw exercises was needed to get me croaking. I used to have to double or triple swallow to get that first cuppa down.
Thus recovery is a marathon and the assaulted tissues take months to settle. Stick to your exercises. They are crucial in preventing fibrosis.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi perfectly normal just keep doing the exercises. They like the toothpaste are for life. Both Dani and u still do ours religiously I’m 6 years post and doing them while I type thus. They become part of life. 2 steps forward 2 back will happen for a good while.
hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Oh thank you Dani I appreciate this. It's all new to me. I feel some days no matter how often I exercise it makes no difference. They don't tell you all this during RT. Does the swelling inside cheek and the tongue and the pain eventually go away. I'm on no painkillers except claregel and bioextra. I spray the gelx as well .feel like it's been such a long journey since first biting my tongue in Jan. I actually bit the cancer not my to tongue. My consultant said biting my tongue saved my life.
Hi also wondering about the mouth wash. My hospital dentist before RT said special toothpaste am and pm then mouthwash lunch and dinner. Although I use ordinary toothpaste and mouthwash as lunchtime which she said was ok. I'm using endakay mouthwash as couldn't get the one on prescription but pharmacy said it's substitute. My question is any other you recommend as endakay is very stingy ATM on my tongue. Thank yku
Hi it does go down just takes time. I’ve a friend who has a slight lisp but she had a free flap partly replacing her natural tongue.
my speech is the same as it was. I can get a tired voice if I talk too long
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
It will get better. It just takes time. I use BioXtra mouthwash which has fluoride and is made specially for dry mouth. I get it on prescription from GP.
If you are in pain then take something for it. Even if it’s just paracetamol. I was in morphine till 12 weeks then paracetamol for another 4
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007