Hi all
I can’t believe I’m saying it, but thank goodness I’m 2 months post end of treatment, yahoo!!
I won’t go over how tough it’s been, I know you all know, blimey we’re a tough lot!!
However, I’m now at a stage where now I’m feeling a little better, I’d like to be able to drive again……it’s rather lonely living alone, and all the visitors have dwindled off. I’m currently taking 10mg of slow release ‘Oxycodone’ both morning and night ie 20mg in total a day. I reduced this with the agreement of my team on Saturday, from 30mg a day. The nurse suggested I go with 20mg for a week and see how get on, then reduce to maybe 15mg for a week and so on. Has anyone else gone through this, how long did it take to come off the ‘controlled’ meds……I’m so very desperate to drive again
Deborah x
Hi Loz
I don’t mind being a dress size down, it’s the lack of appetite that’s the biggest problem. Will force it down some how I guess 
’All clear’ That’s wonderful to hear…….it gives me hope, long may that continue 
Deborah x
Been thrown another curve ball, turns out when I went for my 1st appt with Oncologist on Friday last week that there’s also ‘nodule’ on my thyroid!? Apparently they saw this on the scan during their planning of my treatment but omitted to tell me, what the heck? The hope is that the treatment may have dealt with it? Don’t have the 3 months mri till first week in September, but in the meantime theyd like me to have an ultrasound scan on my thyroid. Got the call yesterday, I’m there tomorrow at 2pm….its certainly a roller coaster!!
Absolutely the exact same thing happened to me. Got a call for an ultrasound completely out of the blue. No explanation. I was seeing the dieticians after treatment the next day but they couldn’t help me either.
The chap doing the ultrasound faffed around looking at my diagnostic mri and going back to the scan and back to the mri. Finally he said I had a lesion on my thyroid cartilage which hadn’t changed in three months so he was assured it was benign.
Weeks later I tackled my oncologist about it. He said that the MRI had spotted it but it wouldn’t have affected my treatment whatever it was and there was no point in telling me about it
Later the PET confirmed there was no activity there so by default and without a biopsy the diagnosis is a benign cartilage tumour, a chondroma. It’s what the sonographer diagnosed by appearance and what PET and oncologist were happy to go along with.
I’ve forgotten about it but I do give my throat a good exam and my neck a poke about, monthly, even five years on.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
Omg, that is just the same!!
That’s kind of reassuring, it just goes on and on doesn’t it 
Thanks Dani x
Touché 
Loz (61)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Haha I do, and Magnums…..well, normally! I forced a Magnum down last night. Can’t believe I’m saying that ‘forced’ it down, it’s so difficult to explain to people isn’t it. Sadly, you have to have been there to get it
I got a ‘family’ trifle last week, it was ‘yuk’ but I forced it down in 3 attempts 
I find Mr Whippy works well for an ice cream. Normally I don't do that style of ice cream, but it works for now. I had Tiramisu last night for the first time since treatment. Now that worked really well 
