My journey in dates….

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I just typed this as a reply and pulled together as my treatment was delayed and I wanted to document:

6th of March rang skin cancer nurse!!! Was fobbed off with a run down telephone diagnosis……

18th of April saw skin cancer nurse for routine check and was referred for a biopsy. 

24th of April Dentist!!! Mouth cancer was missed……

10th of May biopsy was told to expect the worst.

21st of May diagnosis secondary cancer in my lymph node (singular) primary to be found, referral made to head and neck cancer team.

31st of May - appointment head and neck team, MRI booked and CT scan.

7th of June - shadow on spine so another MRI booked and PET scan.

14th of June - all clear in spine, radiotherapy and chemo to start 17th of July with lots of appointments in between to get me ready. I won’t bore u with the details.

I am feeling much better with a plan in place!

  • I am feeling much better with a plan in place!

    Yes. You have a goal and an end point to aim for rather than masses of uncertainty. Don't worry too much about those delays, frustrating as they are they won’t make any difference to your outcome. 
    I was four months from GP referral to start of treatment and I’m alive and thriving five years later. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • That’s great to hear. It did derail me a bit after it wasn’t spotted twice but I’m back on track! 

  • Former Member
    Former Member

    Hi Triple

    Good luck with prep and treatment, tough road ahead....I had 2 misdiagnoses prior to finally being referred to ENT....nearly 2 years later....plenty of support on this forum....keep us updated on your progress

    Peter