Lung Cancer "Progress"

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Hello Again Everybody,

I hope that everyone is well and doing as best as they can be with Spring in the air.

I have just posted on the 'Lung' and the 'Incurable' forums and, of course, I was thinking of you all over here and thought to give you all a wee you an update.

I have placed Quotes around "Progress" as it seem too positive a word for my situation. I think that I mentioned before that I turned down the opportunity of chemotherapy (GemCarbo) and that ny treatment I receive will only be for palliative care.

 Just over a week ago I sent an email message to my new Lung Oncologist, GP and my Macmillan Lung Cancer Nurse; with a copy to my previous NCS on the Head & Neck Team, complaining about the big difference between my previous care and this time. I kept leaving messages and sending emails for which I never received any replies. The big diffeence being that  I did receive replies to this time. I just felt that  I was being ignored and asked if it was because yje cancer is 'incurable' and I am a hopeless case - with hindsight, I did apologies to some extent but I received a good response from the team.

My pain is under some control with MST (30mg + 5mg being added to the evening dose soon), Paracetamol and Lidocaine Patches. Although I am now feeling quite a bit of pain  at he back of my ribcage and wondering if it is elated tom the vcancer or juist a normal backache - not qjuie sedentary but not getting much exercise due to breathlessness ad fatigue.

Take Care,

  • Hi Bob. Thank you for taking time to post to us your fellow head n neck  chums. Hope your pain gets sorted and spring brings some happy times for you and your family
    hugs Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • Hi Bob

    Good to hear from you. Glad that you eventually got a satisfactory response from your medical team. I do hope that you get good control of your pain levels as that makes such a difference.

    Sending you a virtual hug



  • Thank you for posting Bob, hope you get adequate pain relief as that can change alot. Best wishes, Tina 

  • Hi Bob thanks for the update. Sorry you are having to put up with pain, I hope they will sort you out with better pain relief soon. Keep us updated on how you are, it's nice to hear from you. 

    Best wishes to you and your family.

  • Hello Bob. Thank you so much for letting us know how you are. My thoughts are often with you and I truly hope you find peace and pain relief. There is much love for you in this forum. Xx


    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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