Two weeks post end of radio therapy

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So, 2 weeks post RT and I'm not sure how I'm supposed to be feeling to be fair. Had a phone consultation with Addenbrooks last Thursday, they seem happy with progress and remains side effects , so I guess I should feel OK. But somehow I'm sure I'm missing something, tired and fatigued still and on a liquid diet and feeling as if I'm at a crossroads but feeling stuck. I tried some sauce from chicken casserole and beef in red wine and to be fair they were descusting in taste (fatty taste) and texture (slimey) and to say I was disappointed is an understatement, so I'm going to try some soup today (whilst everyone else has roast pork!!!!).

Still fighting some ulcers but this morning the texture of my mouth feels different so more healing maybe? Plan going forward still looks OK,  bit of rehab at the leisure centre and gain strength and energy. Slow road I'm beginning to find out as someone has said, marathon not a sprint.

  • Hi  

    You are at the height of the effects of treatment. Only slowly slowly will things get better. You can reckon on feeling a little more comfortable by six weeks and twelve weeks sees most of us turn a real corner. Then it’s a slow plod back to health. Six months before you’re really on track. 
    Stick with it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi BL755, don't feel down, you are very early days post treatment. Unfortunately recovery can be a very long drawn-out process, often feeling like one step forward and two back. Your body has a lot of healing to do, which will only happen with time, you have to give yourself that time, things will slowly start to get better, it can't be rushed, you will get there.

    Ray.

  • PS. Have a read of this essay by psychologist Peter Harvey. It addresses so many feelings we have after treatment workingwithcancer.co.uk/.../After-the-treatment-finishes-then-what.pdf

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi its really early days  for you. We get told 2 weeks after treatment we should feel better or start to. I’ve been in here over 5 years and yet to meet anyone who remotely feel better . we are all different and we all recover different paces.
    Like I said it is really early days for you. Just take it one day at a time. Ulcers plagued  me for a good 12 to 13 weeks so just keep on top of oral hygiene. Food will return but it’s a marathon not a sprint

    . Think nursery food when you’re ready. my go to food was poached eggs  for a good while. Toast far easier than bread when you’re ready. 

    hugs Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi BL755

    I finished Chemoradio in June 2023.... 4 Chemo + 30 radio...August before I really felt recovery was gaining any speed....still have wee hiccups ....we all do...

    Taste? I love HP sauce... today was the first day I felt I could tolerate it...another small step forward

    Taste Changes - Advice for head & neck cancer patients A4 (cht.nhs.uk)

    Take care

    Peter

  • Taste? I love HP sauce... today was the first day I felt I could tolerate it...another small step forward

    HP sauce was a huge miss for me (along with Lea & Perrins), a powerful flavour that took a while...as I type this my son is making sausage and mash and the jar is at the readyThumbsup

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Hi Mike

    HP sauce is another little victory....Saturday nights used to be chicken Madras, Bhuna or Jalfrezi as standard ....not there yet....have not given up hope.

    Enjoy your sausages and mash.

    Peter

  • Saturday nights used to be chicken Madras, Bhuna or Jalfrezi as standard ....not there yet....have not given up hope.

    Had a delicious chicken Jalfrezi last night, you'll get there.

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Today I did manage some Mand S cheese puffs, oh the taste. Every cloud 

  • I found from  2 weeks I could see daily and weekly  improvement. Taste started to come  back at 3 weeks but lack of appetite and struggle with mucous made me want to throw up more than eat. I kept a weekly diary and if you do that you’ll really see the improvement. The fatigue comes and goes and make time to rest. 8 Weeks post and I still need my daily nap. I have no appetite and eating is more to fill me up.