So update 3, the home run 5 treatments to go and RT complete. Not had solid food for 10+ days just "tasty nutritious shakes" ,my mouth and tongue feel like I've been chewing barb wire and are sore , ulcerated and all sorts of shades of red and white. Bathroom shelf is full of codine and various mouth washes with some exotic names, who knew I just thought it was all mouth wash!
The team at Addenbrooks ( whO have been superb throughout)all seem happy with my progress and to be fair they covered the side effects well so nothing has been a surprise. now just planning life after daily A1/A14/M11 trips, and my family and friends don't need to run me either. So now I guess (for me is a grey area) how does early post RT look ?
I've got some bits to stay occupied and I'm looking at a cancer rehab programme at my lesuire centre for March to start building back up to go back to work and spring his coming,caravan trips already booked so life is moving on post cancer and post treatment because in the end it has too, been static since November need to push and go forward.
I've had two mantras during this journey "No Surrender " that from an old friend and "always someone worse off than me" because quite frankly given the scope of this shitty disease there always is!
So week 6, treatments 5-1 here we go , Per Ardua ad Astra
Hi wel done and keep on plodding. Recovery we are all different I liken it to a marathon not a sprint. I had 7 weeks radiotherapy and 2 chemi . We flew to Spain week 8 for 3 weeks with oncologist s blessing. We were going to our own apartment I couldn't have done a hotel. Some people take much longer but I reckon a good 6 month is a yardstick to aim for. Some get late onset side effects some don’t. Just keep going and enjoy the caravan.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
You're doing great! Hang in there - not long to go now.
Good luck
Catriona
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Oct 2024 nearly 2 years all clear. See my profile for longer story
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