Scared

Hi Bethie1  welcome to our little community. First take a deep breath. Yes it’s a long road ahead but hold onto the fact that HPV positive throat cancer is curable. It responds really well to radiotherapy. Most of us here were perfectly ok one day, fit, well and the next day we had cancer. 
Try not to dwell on being anxious. He’s in good hands, things are moving apace. I was 4 months from finding my tongue cancer to beginning of treatment and I’ve just had my fifth anniversary.
Dint bother with Google. Stay with us and ask here.
Best wishes . 

PS don’t worry about the extra scan. They are looking for the primary and any more lymph nodes affected. PET can pick these up better. 

Hi Bethie1, welcome from me also. You're right it is all very scary, and the waiting is unbearable. However, be reassured, by what Dani has said, these cancers are curable, with many of us on here being living proof of that. Once all the testing and the scans have been done you will get his treatment plan, which will all be explained to you fully, you will feel better about it all then. Ask as many questions as you want someone will always answer if they can.

Ray.

Hi Bethie

T2N1M0 tonsil cancer...diagnosed February 2023....Chemoradiotherapy finished June 2023

I first went to my GP in mid 2021 with an enlarged tonsil, then later with a lump on my neck...told both times that it was nothing sinister...Dec 2022 another GP referred me for urgent ENT investigation...many biopsies and scans later it was confirmed as tonsil cancer...luckily CRT treatment worked.

Yes it was an extremely worrying period waiting for scan/biopsy results but the outcomes for patients after CRT are usually pretty  positive.

Best of luck

Peter

Hi Bethie1 Everything you have described happened to me in 2021, it’s natural to be scared, I was terrified, this wonderful forum and the people in it, got me through. I also was a few month from start to beginning of treatment, and the outlook for HPV is good. You will get good advice on here, my first piece of advice was stay off dr Google. I had two operations and didn’t need radiotherapy or chemotherapy, so I cannot offer any input, but there are others who can, also please read their blogs, inspirational 

Thank you so much for your comments - I'm having a major wobble today and imagining the worst scenarios!  I came across this forum by accident, so glad I did.  Literally just counting down the hours until we get a better idea of what is ahead of us.

Thank you!  It's so reassuring to know there is help out there and we are not on our own in this!

Thanks for replying Peter - the waiting is so difficult, but each day is a day closer to getting started.  I'm sure I'll be asking so many questions going forward and knowing there is so much support on hand is so reassuring.

Thanks Ray - never heard of this type of cancer until a few weeks ago. Thank you for replying.

Hi I could have written this! My husband has been through exact same process as yours starting in November . he’s 58, tee total non smoker and vegan so it really doesn’t seem to discriminate! My husband pet scan showed it had not spread and he has now had a tonsillectomy and biopsies from tongue and also the lump on his neck mostly removed and biopsies. They revealed cancer in his right tonsil and we are now awaiting 6 weeks of radiotherapy and 2 chemo sessions but have been told that whilst the treatment is brutal the results are very good. Please try and stay positive, I know how sick you are feeling but it won’t make things any better by worrying, he’s in good hands,  the waiting is definitely the worst. Wishing you all the best xxx