Hello all.
My last couple of posts have been about my having to have a permanent PEG after treatment 11 years ago for cancer of the lower tongue.
I had just about come to terms with that and then on Friday 8days ago I had an appointment with maxio facial to have a look at a tongiue ulcer that would not clear up. You can probably tell where this is going. The consultant was very straightforward and said he was pretty sure it was either the cancer back or a new one. Since then I have had an MRI scan, a CT scan and a tongue biopsy and I am awaiting the results and the outcome of the multi disciplinary team meeting next week.
I cannot fault the speed of the response, really quite unexpectedly remarkable and in an odd way comforting to be back under the teams wing but knowing that further RT is unllikely as I had a full dose last time and having already heard the "quality of life" term from the consultant it is also bit of a bolt out of the blue.
I was planning on retiring in May anyway so it looks like I may be bringing that forward.
So now I wait and try and keep busy. Hey ho.
JonH
Oh Jon. Thats not the news you wanted and I’m so sorry. You must be so disappointed with it all after being clear for so long
Fingers crossed it’s not cancer but if it is these surgeons are pretty slick and can work wonders
Lynn will likely pop on to give advice. She has had three major ops for oral cancer and done well through all of them.
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Oh dear John not the news any of us want to hear fingers x there’s an alternative the surgeon s are slick and there’s new things all the time
hugs Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Jon
I am so sorry to hear that you have a potential recurrence of cancer. I do hope the biopsy proves to be negative but it does pay to be prepared in case the results do turn out to be positive. It is great that your team is so proactive.
I have now been diagnosed with 2 further occurrence of jaw cancer after my first diagnosis in 2013 when I was 59 years old and still working. It was 6 years after my first occurrence when I got my 2nd diagnosis. I was retired by then.This was a real shock to me as I had got on with my life and had put the cancer experience behind me. I found the 2nd diagnosis harder to take than the first one and went through a real down time for a while. You seem to be bearing up much better than I did at that time. However in the end it boils down to just having to put your head down and go for the treatment. It was the knowing what to expect, more radiotherapy and the impact on my life again that I found the most difficult. However I got through that experience and went on to live a good life again. When I was diagnosed the 3rd. time it did not have anywhere near the same impact as the second time. This was 3 years later.This time I took it in my stride and did not have the same pychological reaction and got through the treatment quite well. I had already pretty much adapted to the changes that the 2nd. op brought and thought with any further changes I could adapt too and that is what happened.
Here I am now living a very happy life and enjoying new experiences still. My life is slightly altered but nothing I can't work with. I still have regular check ups and can't fault my wonderful medical team. I trust them completely they have been so encouraging. Couldn't ask for better.
You will get through this and come out on the other side. Your medical team sound great so put your trust in them.
Sending you really positive thoughts at this time. It does play havoc with your emotions for a while but you do get there.
Lyn
Sophie66
Sorry to hear of your situation. Wishing you all the best, it looks like your medical team are on the ball and will sort you out ASAP. Take inspiration from all on here and especially those who have gone through this multiple times and come out smiling, like Sophie66. Good luck. x
Sophie66, you are so inspiring for anyone going through this!
Lyn is an absolute inspiration on this forum. Macmillan gave her a special badge ……. Hazel has one too
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
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