Hello everyone,
Just had the call from radiotherapy after they had discussions with my surgical team and they had made the decision that I do not need radiotherapy treatment.
One one hand, I am elated as I know it's a tough gig. On the other hand, I feel slightly worried. They have said that ultimately, it is my choice and I can have it if I feel that I want it.
Their reasoning is that the tumour margins were clear but they have a suspicion that cancer may have gone into a blood vessel but are 80% sure that it had not. They said we should watch carefully and see if anything happens/comes back but if it does, I would have to have the surgery all over again plus radiotherapy.
What would you do? Thanks.
Cazzita. x
I just wanted to give you a hug ....
I had no choice and I too was 67 when my treatment started. What a dreadful decision to be left in your hands.
At least they have actually found the primary cancer and removed it........I think I'd wait
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi Cazzita
Your team would have definitely recommended radiotherapy if your margins were not clear so I think it is a win for you. You will be monitored regularly so if there is anything suspicious occurring they will pick it up.You could put radiotherapy on the back burner for now and then have it later if required. I would definitely wait and see and put my trust in my medical team. However it is a personal decision and completely up to you.
The unknown future is always worrying but nobody knows what it might bring so think positively and move forward. I decided to put my trust in my team and let them do the worrying and get on with my life and that has worked for me.
Sending hugs
Lyn
x
Sophie66
Hi It’s so unfair for the onus to be out on you in the first place. But as others have said go with what your team are telling you but please make sure you don’t slip through the system chase up appointments and keep a diary note if any symptoms or niggles.
hugs from me too . You’ll be on a watch and wait regime saving radiotherapy for later if needed
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thanks lovely people, I feel reassured now and relaxing into the idea of being monitored carefully. Thanks so much for your opinions, they really matter to me. xx
Hazel is right. Dont let those follow up reviews slip xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Cazzita
Your situation is similar to mine 4 years ago. I went with no RT after surgery (I had no primary to target). It was my choice and the MDT agreed with me both times I made that choice. I went on to what they call watchful waiting - an enhanced version of the normal post treatment checks. This process found my "returning" tumour both times when it was very small (don't worry about the tumour returning, read my profile to seem my unique cancer journey that is similar, but also very different from yours). I decided to keep RT in reserve as it normally is a once in a lifetime process. That time has now come for me 4 years down the road. I am glad I made the choices I did as I've had 4 years of surgical side effects, but also 4 years of avoiding chemoRT side effects and had a whale of a time. Happy to discuss further through private messaging if you feel it may help.
Your situation is similar to mine 4 years ago.
Yes but your primary was never found and Cazzita’s has and been dealt with. She is in a much better position than you.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi Cazzita. Don’t dwell on having no radiotherapy the team will keep on eye on you. Nows the time to stop looking over your shoulder, eyes to the front and live your life. my mottos one life just live it.
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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