11 months on

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Hi everyone.  Just wanted to update you all on hubby's progress. It is a yr in Jan since he got his cancer (tonsil with lymph node, p16 positive) 

How terrified we were in this minefield of info and schedules. But THIS site without question helped us deal with every stage as we read blogs and the stages of treatment, side effects and help line for remedies to ease our walk.  Incredible. 

so after a peg fitted 2 teeth put (feb 23)  6 wks of Radiotherapy and 5 of chemo. (Ending end April 23)  He is slowly returning to his former self. 

We are now 7 months post treatment and he is eating everything, chocolate  still craggy and red wine is tasting of chemicals.  However most food is tasting ok and less water is required to swallow.  He has had 2 check ups with his consultant with a scope up the nose.  Everything is clear and looking good.  

This process has taken months, at times seeming very slow.. but thanks to reading posts on here you realise this is normal. We were told that 12 months post treatment we will know more of the recovery of the palette etc. 

Since the peg was removed at 6 months post (he hadnt used his peg (only for flushing) since 6 wks post.   Unfortunately miscommunication led to it taking 6 months to remove. However since the peg removal my hubby looks himself, no heart burn (this was prevalent whilst peg was inserted) and his colour looks better.  Weight is good he hasnt regained his pre treatment weight but he said he had half a stone to loose. 

By hubbies own admission and my acknowledgment his mental processing seems alittle slower, however at 60 that could definately be an age thing. Wink

So onward we go, we've bought a place in the Lake District and both fully retired now.  cancer makes you do things you once put on the shelf...So we can enjoy relaxing walking and finding a new pub to enjoy some lovely Wainwright's beer.  

Ijust  want to say to everyone currentlygoing  through treatment or recovery. You will get there, rely and trust  your team they are to help, no question is silly only necessary to you..   and share your journey on here,  it helps you off load and also helps those around you realise that what they are experiencing is normal.  Knowing what is coming is incredibly helpful and reassuring.  

Thank you to everyone on this incredible site..   I will continue to pop in every few months..  wishing everyone on here strength to face treatment both physically and mentally. Full recovery and a healthy future.   Hope everyone regardless of their state in this process has a peaceful Christmas.  Xx 

  • Hi Gail. Thanks for your thoughtful update. I’m so glad your husband, in fact both of you really, is making such good progress. The oncologist responsible for my care told me that the cancer would take a year out of my life but he would fix me. It did and he did. I’m a whisker away from my five years with a trip planned the day after my last review up to one of our favourite haunts in the Lake District. 
    Take care. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Gail, what a great update, so pleased your husband is doing so well. Posts like this really do inspire people and let them know, that they can get through the treatment with good results. Best wishes. 

    Ray

  • Hi Gail fab update thank you. My motto one life just live it. Hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Dani.  Well if you are every south Lakes we aren't far from Cartmel drop me a line.. more than happy to meet up for a pint with you both..  Gail xx 

  • Lovely  town Cartmel. Abbey racecourse and that ridiculously expensive L’Enclume 

    Sharing a pint would be lovely too. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • That's great to hear! And well done for highlighting the positive - it does help you sort out your priorities doesn't it. Thank you for posting. Wishing you both a happy healthy Christmas

    Catriona 

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Oct 2024 nearly 2 years all clear. See my profile for longer story