7 months post-treatment and struggling

Hi DaddyBear 

So sorry to hear you are still struggling 

Being “forgotten” by ENT is unforgivable. I was lucky in that I have stayed with my oncologist for  nigh on 5 years rather than being passed back to ENT or Maxfac. 
Try not to worry about missing appointments. The early ones are usually more for reassurance as early treatment failure is extremely rare. 
Going back to the mucous. Are you drinking lots? 
Thick mucous is due to the saliva not being produced. Auricular acupuncture kick started mine and I started it around the same timeframe as you are. Chewing sugar free gum is a huge help too. 
Regarding  your dizziness, how is your blood pressure? 

Hi Beesuit

Many thanks for your reply. 

I think I drink plenty although I’m never quite sure. Always sipping at water and drink 2 coffees and 3-4 cups of tea each day.

im wondering if its just that i‘m more conscious of it at the moment. Got taken to A&E with chest pains about 5 weeks ago - ECG ok but wanted treponin test to check heart ok. Waited 5 hours then walked out (if it had been my heart I’d have been dead by then - subsequently found the test was fine). Seeing GP is a nightmare, A&E waiting time now often 9 hours+, out of hours GP takes 6 hours to ring back. Think I might just be suffering from NHS-induced panic. Whether it’s routine check-ups, non-urgent acute issues or emergencies, there’s just nothing there.

Thanks again

David

Hi Daddy bear. Can only  echo what Dani says  said m the early appointments are really for reassurance I didn’t get scoped until 5 month after treatment finished ent just used to yank my tongue I kid you not that hurt   Then get a tiny mirror to habe a look. I said slip through system atb2 years  a bean counter took me off the cancer recovery path. But I soon made a song and dance and was put back in we need to be pro active sadly even no ore than previously.

aim for 2-3 litres of water every day it will help . I also had auricular acupuncture which kick started saliva and sugar free gum like Dani says is invaluable 

Has your blood pressure been checked as mine used to drop quite a bit due to chemo ? 
stick with us we’re all happy to help..

Hazel 

DaddyBear said:

2 coffees and 3-4 cups of tea each day.

Too much of both which are dehydrating. Replace the tea with herbal and take Hazels advice re volume of water. Measure what you’re sipping ? 

Hi David.  I totally agree with you.  I too, have felt v alone at times.  When things go wrong and you need help it is a dreadful feeling. It’s difficult to advocate for yourself and feel unwell at the same time.  It sounds like you have a lot going on and I don’t blame you for feeling anxious.  I am the same.  All I can say that as time goes on I have felt better able to cope.  I hope that happens to you as well.  I have a lot going on with one of my teeth at the moment and have been plunged back into the panic mode again. So I do understand.  Sending all best wishes. You are not alone.  Lizzie x

Lizzie.123 said:

I too, have felt v alone at times.  When things go wrong and you need help it is a dreadful feeling.

And you feel nobody understands 

This is a good read 

workingwithcancer.co.uk/.../After-the-treatment-finishes-then-what.pdf

Hi DaddyBear, I finished Tr on 07/07/23 and I didn't have much problem with mucus initially. Then it started about 2 months ago. It builds up over the day, and it doesn't come up. It coats the roof of my mouth & back of my tongue and distorts the taste of my foods. I sure hope it's not still there at 7 months and I feel for you.