Cancer in the Piri-fossa

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There must be others out there in Cancer Space that have had this type of cancer????   I would love to speak with you.    X

  • Hi  

    This is Hypopharyngeal cancer. 
    I’ll do a search for you 

    Personally, I have  a friend three years clear of this. 
    MikeO, one of our community champs had this too. He has a blog you could check out. 
    mike-oldfield.blogspot.com/

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Ah… sorry  

    Having done a search for you, you know this already. 
    At least you can have a look at mikes blog 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • We are a small select group Alfienangel, I was initially diagnosed more than a decade ago now, and I'm still very much alive and kicking! Been some bumps on the way mind, but that was just me drawing the short straw.

    Be happy to chat whenever you feel the need.

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Hello Mike.  I'm now 12 months post treatment. I had 35 factions of RT nbilaterally because it had crossed the mid line and 6 chemo with cisplatine. I'm now 12 months post treatment. I have no salivary glands, very little taste and cannot really eat, I am on a pump. I recently underwent a Cricophangeal Myotoma which hasn't really helped. I haven't eaten anything much for 14 months. I am having a further Fluroscopy this week.  What I would be very interested to know is she have had anythingb similar and the outcome???? I still have this awful muck that I can't shift,. People keep telling me 'you're looking at 2 years' it will get better' it is better but a long way off normal. I know normal won't happen but I need to be able to eat and taste!!!!!!  I wish somebody had warned me about the potential effects.  There are days when I just feel like giving up really, I'm finding it all very hard.  An6badvise?????    X