Last Update (21/05) - Ho Hum, Seconds out - Round 4!

191 replies
57 subscribers
10816 views

Well, just shy of 4 years since diagnosis and I'm once again on the operating table. This is becoming an annual event. However this time it looks 80-90% like a tumour. A week to wait for the panendoscopy and then a couple of weeks for the histology and MDT. My neck has been feeling "different" (not painful or anything concerning) for a month. Routine check-up and not looking good. Offered a PET scan but I've opted for biopsy to confirm then scans to see the extent. Early days, but as it is in a similar location to a previous round (2) I will probably opt for surgery as before and hope for clear margins avoiding RT once again. Somehow I don't think this one will disappear before the main surgery like the last one did.

As ever - updated text in the thread below.

Mick 28.12.22 over 1 year ago in reply to PFJTHS

Best wishes for tomorrow Peter.

old biker over 1 year ago

All the best for today.

RadioactiveRaz over 1 year ago

All the best from me as well

Hazel

Hazel aka RadioactiveRaz

My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

2 videos I’ve been involved with raising awareness of HNC and HPV cancers

https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

https://oraclehnc.org.uk/signawaycancer

Blod over 1 year ago

All the best for today.

Beesuit over 1 year ago in reply to PFJTHS

Fingers crossed for you today xx

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

I BLOGGED MY TREATMENT

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Debbie60 over 1 year ago

All the best for today

PFJTHS over 1 year ago

Saw the consultant yesterday (15/11) and it is as expected. The cancer has made a reappearance. Scans are next on the list. CT set for the 21st and MRI on 26th.

The consultant is difficult to pin down - I'd never play poker with him! I think he is suggesting, subject to scans, that the cancer may be spread thinly through the base of tongue and the only way to tackle it is radiotherapy. I was hoping to go down the surgery route first, but we will see.

Poetically it is 4 years and a day since I had the first diagnosis.

FOR ANYONE READING THIS, ESPECIALLY THOSE THAT DON'T KNOW MY CANCER JOURNEY, THE "REGULAR" REAPPEARANCE OF THIS CANCER IS VERY UNUSUAL AND EXTREAMLY RARE. I AM A MEDICAL CURIOSITY. THUS WHILST YOU MAY BE CONCERED ABOUT REOCCURRENCE IT IS UNLIKELY TO HAPPEN TO YOU.

I've updated my bio if anyone want to see my journey.

Peter

See my profile for more details of my convoluted journey

RadioactiveRaz over 1 year ago in reply to PFJTHS

Hi Peter. As always be led by the man who knows I’d consultant suggests radiotherapy then radiotherapy it is. We will all help you along we’ve plenty of experience between us

We await your updates

Hazel x

Hazel aka RadioactiveRaz

My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

2 videos I’ve been involved with raising awareness of HNC and HPV cancers

https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

https://oraclehnc.org.uk/signawaycancer

Beesuit over 1 year ago in reply to PFJTHS

Oh peter, I’m sorry. You half expected it I guess, nevertheless the reality is still shocking. Hope they get your treatment plan in place soon.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

I BLOGGED MY TREATMENT

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

old biker over 1 year ago in reply to PFJTHS

Hi Peter like you say you did expect this would be the outcome. Hopefully they will now get to the bottom of it, once and for all. All the best to you.

Ray.

More from this forum

Last Update (21/05) - Ho Hum, Seconds out - Round 4!