Hi everyone on this helpful site. I just wanted to post an update about me so that people new to this site can maybe feel a little bit reassured. I know when I was first diagnosed back in July 2021 I read everything I could about people’s experiences with throat cancer and their outcomes. My tumour was T1/2N2M0. At the base of my tongue. It feels scary just typing that! I was convinced I was going to die!
However, here I am 2 years after finishing treatment I had my meeting with my lovely consultant Prof Nutting at the Marsden Hospital in London yesterday I have moved from 2 monthly visits to 3 monthly now which is a big milestone He is fully expecting me to be fine but to continue with the regular monitoring as usual for everyone
So, how am I? I think I have been quite slow to recover I have taken things at a slow pace and not pushed myself too hard However, these last few months have seen my return to feeling very well and having lots of energy to cope with everything
I walk the dogs, swim regularly and generally keep pretty active And I am pleased to report I feel able to be busy and not tired out anymore I can look after my grandchildren and we have been away on some lovely weekend breaks
I was extremely sick at the end of treatment and in a lot of pain this lasted quite some time, especially lack of appetite and the sickness, but now I can eat everything and my swallow is good My taste is a bit tricky, some things are excellent but some things are v bland. But I can live with that. I am lucky I can eat Chillies/mustard etc so I just add that sort of thing in. The dreaded dry mouth is a nuisance. It has definitely improved though snd I am finding if I drinks LOADS of water that seems to help as well I use Biotene gel at night I suppose my eating isn’t quite the same but it’s more than good enough
I lost my confidence really, after treatment Confidence in life and going out etc etc I sort of felt I had ‘failed’ because I had got cancer
but all this is slowly diminishing and I am able to go out with friends etc and enjoy going out and about.
I take very good care of my teeth. I must admit I do worry about ever having a problem there but I guess I will just have cross that bridge etc.
Sorry to drone on! Just wanted anyone whose interested to know that there can be life after treatment, I feel a slightly different life, but a good life nonetheless
sending all best wishes to everyone on here
lizzie x
Hello Lizzie. This is all wonderful. It gives such hope to people just starting out.
These threads get lost after a while when people stop replying. It would be good to signpost others to it in the future so would you find the time to copy paste it into your profile. It would be so encouraging
Well done.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi Dani. I don’t know how to do that!!!! I sm not very good at tech stuff. I will have a go if u explain a bit??? X
Click on your name this is mine
click on edit profile
Copy paste into your biography then click save
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
I am sorry. I can’t do it. I will wait till one of my kids visits and get them to do it! X
Great. Xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi Lizzie. Brilliant post continue doing what youre doing snd here to the next years update.hugs Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thankyou everyone for your good wishes to me. I send them back to you. Lizzie x
I am sorry. I can’t do it. I will wait till one of my kids visits and get them to do it! X
Meanwhile I'll ask if one of the mods can do it, if you don't mind
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
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