Third week of treatment

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Hi, Just finished third week of radiotherapy with one round Cisplatin first week.Next round on Wednesday.Haven't been able to eat since end of second week but can manage to drink a pint of full fat milk each day and with the fortisips haven't lost any weight so far.Managing a forty minute walk each day with the dogs and a wee tidy up in garden.Then need an hours sleep in armchair.Mouth painful so Difflam probably 5 times aday.No taste and saliva awful.I dream of a roast chicken dinner !! Ploughing on.Just taking co-codamal four times aday although I know things will get worse.Is anyone else at this stage in treatment too ? All the best, Turi

RadioactiveRaz over 3 years ago

Hi Turi great to hear from you just keep doing what you’re doing a bit if exercise each day works wonders. Don’t forget laxiodo if you’re on cocodomol.
hugs Hazel x

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.

https://oraclehnc.org.uk/patients-and-carers/patient-hub/webinars

Turi over 3 years ago in reply to RadioactiveRaz

Hi Hazel

Have the laxido at the ready !

Hope you are doing fine

Turi

RadioactiveRaz over 3 years ago in reply to Turi

Hi I’m doing really well thank you just cycled 40 km in our favourite place in the sun. One life just living it.
H x

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.

https://oraclehnc.org.uk/patients-and-carers/patient-hub/webinars

Beesuit over 3 years ago

Well done Turi. So proud of you. Keep going. Xx

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Turi over 3 years ago in reply to Beesuit

Thanks Dani,

It's a long road.......with a chicken dinner at the end ! I never realised what a filthy temper I have until now.I've turned into a cursing monster. Seems to help letting it all out.

Turi

Debbielouise over 3 years ago

Hi Turi

Im so glad to hear you made it through to week 3 thats great news fingers crossed for decond chem andcrest of radiotherapy.

All the best

Debbie

Beesuit over 3 years ago in reply to Turi

Rant away. You deserve to. We are good at listening here

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Turi over 3 years ago in reply to Debbielouise

Thanks Debbie.I know I have a very long way to go but it's half way through the first bit.Just trying to put markers in along the way.

Turi

Beesuit over 3 years ago in reply to Turi

Turi said:
.Just trying to put markers in along the way.

Make sure they are spot on.
I counted off the days of RT but Christmas and new year intervened and I got confused. Went in on a Wednesday to have my final RT to be told I had one more. Good grief! I can’t describe how I felt! You can imagine.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Turi over 3 years ago in reply to Beesuit

Dani,

Yes I can imagine.How long was it after the radiotherapy that the ulceration in mouth and throat started to ease a little?

Tried a poached egg today (with my sister staring on) just couldn't get it down at all.I'm quite sure she thinks I'm exaggerating.I can't even take ice cream which is like swallowing cold cement.

Turi

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