Worsening neck lymphoedema

Hi. Photobiomodulation may help 

Has his therapist suggested that? 
Some people here used a Hereford? collar as well. 

Hi Dani. She suggested red light, not sure if it's same thing? Will also look at Hereford collar. Basically we're having to research this ourselves, not much forthcoming from hospital, apart from oh yes that can happen. 

Birdwoman said:

Will also look at Hereford collar.

 Hereford collar. What now? 

RED light Photobiomodulation

I had the same treatment as your hubby and found the Hereford collar with regular self-massage to be effective. I still have a little residual lymphodema but it doesn’t trouble me. 

Hi, my husband has just been discharged from the lymphoedema clinic. It too around 8 weeks on the NHS waiting list so we initially tracked down a therapist locally who specialised in this condition. She sits on the lymphoedema board and was extremely knowledgeable and worth every penny. She confirmed that early intervention is key. She asked my husband to trial a product  to use at home that I can only describe as a tight fitting neck snood to sleep in , alongside his weekly treatments. He still sleeps in it to prevent a return of the condition. He had 4 private appointments and then transferred to the NHS clinic run through our local hospice . 3 weeks since last treatment and still no signs of any swelling. He discussed this with the NHS lymphoedema nurse and she said they can be purchased but cost £120 therefore they are too expensive to be supplied through the NHS. However if you get offered one , they really have helped my husband. 

Hope this helps

Tomba said:

She asked my husband to trial a product  to use at home that I can only describe as a tight fitting neck snood to sleep in

Hi Tomba

Do you have a name for this, please?

I don’t have the name of it but this is it. It is elastic tightly woven into the lines of fabric that fits from the lower neck right up to the chin, under the ears. It leave deep crevices that gradually fade throughout the day.

I’ve asked my husband to request the name from his therapist. I’ll keep you posted

Tomba said:

I’ve asked my husband to request the name from his therapist. I’ll keep you posted

Thanks Tomba. It looks like the sleeves already in use on arms and legs

Yes, quite possibly. Worth knowing for any sufferers