Hi there Lillian back again
T3N2BMO P16 positive SCC right tonsil
I am now 2 and a half year post treatment and my swallow is not improving. It did improve for a few weeks but now it is as bad as ever and my mouth is dry beyond belief. Please, if anyone has any advice or suggestions I will be very grateful
Lillian
Hi Lilian
Dry mouth. What saliva substitutes/ mouthwashes are you using? Is your mouth dry all the time? Have you tried acupuncture Are you still on Fortisips and have you still got that lump under your chin that you thought might be causing you difficulty in swallowing?
Sorry for all the questions.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Dani, thanks for getting back to me. I use Biotene mouthwash and dry mouth gel and also have Xyligel but they only ease it for a matter of minutes. I am trying not to use the fortisips but lately I’ve had to have one a day just as a top up.
The lump is not there but there is definitely some mucus sticking, I brought a bit up last week but I had to drag it out of my throat but there is more there and I struggle to bring any up at the moment. Not tried acupuncture yet though I have thought about it.
Lillian
Hi Micky, I mention it to my Head and neck Consultant every time I see him and a couple of weeks ago he said that the extra dryness in my mouth was due to the hot weather.
Lillian
Try a pocket size spray filled with plain water. This is often better than continually sipping water which flushes any saliva away.
Can you chew gum? That’s a great salivary stimulant.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I do chew gum Dani, I use a one called Pur gum which contains Xylitol but because I have dentures I don’t chew it every day as I end up getting ulcers on my gums.
I just wonder if this is as good as it gets for me, and I know that I should be grateful for that, it just gets me down sometimes
Thanks Lillian
Oh Lilian I am so sorry for you....I wish I had an answer. I'll throw another suggestion. I have been prescribed Salivix pastilles and they help a lot. Amazon have some funky Finnish things that might be worth trying too Xylingxyling - Finnish Xylitol Pastille
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thanks Dani, does your GP prescribe them for you? I have just ordered some from Amazon to try.
Lillian
Hi Lillian. Keep at it try Danis suggestions. I found the acupuncture kickstarters mine but u did it around the 6 month period. It’s worth trying. I’m now 7 years and occasionally still need a sip
of herbal to get some foods down mostly chicken breast and a bacon sandwich. Boots fi a dry mouth spray it’s hand bag sides costs around £3 I used tj carry that in my handbag. Remember the extra warm weather won’t be helping. I used use xyimelt s at night do you?
hugs
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thanks Dani, does your GP prescribe them for you? I have just ordered some from Amazon to try.
I get Salivix on prescription. Not tried the others
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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