Throat Cancer

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Hi all,

just had my first op for throat cancer, had my lymph glands removed on the left hand side of my neck.

Got robotic surgery to remove the tonsil on the left side next week, not looking forward to it as I know it will be painful, I will be on a pain button for 3 days but worried about the after effects and having to learn to swallow and talk again.

Will then have to wait 3 weeks to find out if I need radiotherapy as well.

  • Hi

    I had robotic surgery, and yes for a while swallowing was painful and difficult, I thought I sounded like Donald Duck, friends and family said it wasn’t that bad. Take advice from speech therapist, they helped me enormously. My golden moment is when I managed a buttery crumpet with lashings of cream cheese. You will get through it, might not feel like it but you will. I didn’t need need radiotherapy or chemotherapy. Sending you best eidhes

    Debbie

  • Hi  

    Tonsillectomy in the adult is pretty painful but you’ll get plenty of analgesia.  They  won’t let you out of hospital till you can eat so try not to worry about that.
    Fingers crossed you won’t need any further treatment.  

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Thanks Debbie, had meetings with speech therapist, pain nurse and dietitian but you still worry, reading some of the posts on here has helped though 

  • Hi fRon what others have said the pain is at its worst around 7-10 day after op. Kerp on top of painHopefully you won’t need radiotherapy 

    but if you do there’s  plenty of us on here to help. 
    I onky had tonsillar biopsy thrn chemo radiation 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I had both my tonsil (RH) and lymph nodes out in one go. In my experience the tonsillectomy pain peaked around Days 3/4 and then waned quite quickly.  I was sent home after 5 days with lots of analgesia. Within about three weeks my throat had healed nicely and I could comfortably eat take away fish and chips. It’s important to religiously do both the neck exercises and swallow exercises to make a good recovery. My neck still gets mildly stiff at times but most of the numbness has gone and to be honest I’m not sure whether the stiffness is due to the surgery or the radiotherapy - or both. My throat sometimes flares up but is not painful and certainly is a consequence of the RT.

    Good luck with it all. 

  • I couldn't have surgery for throat cancer. I've had chemotherapy. My treatment finished in October. Today I still cannot eat, swallow properly but I can now drink.  I still havd no,salivasrynglandx or taste.  Mine has been a long process. I'm now waiting for surgery, to cut a long muscle alongside my speech box to hopefully sort out a muscle spasm and then f it works, I have to learn to,eat again. I'm on pump feeding.  I haven't been able to eat since week 2 of RT at the end of August.  It's a very long journey.  I wish you all the luck andvgood wishes for a speedy recovery.  X

  • I'm sure everyone is different, but this is my experience. I had a tonsillectomy by TORS 2 months ago. I was told by everyone it would be agony. The anaesthetist said the pain would start 3 days post op and last two weeks. That was pretty much spot on. Paracetamol + ibuprofen for three weeks or so, oramorph every couple of hours from midnight to 6am, not during the day. It was very uncomfortable for 2-3 weeks, I lost 12 lb in 4 weeks, but at no stage was it agony, and at no stage could I not talk. It wasn't fun, but it certainly wasn't aweful. 

    (They didn't get it all, so chemoradiotherapy starts Monday)

    Mike 

  • Hi All,

    may thanks for your support and kind words, had my surgery on Thursday and they are pleased with my recovery. Hopefully going home Monday 

    kr

    clive

  • Hope all goes well Mike, speedy recovery