Shaky Day

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Having a really bad day.The waiting for results isn't getting easier.Can I ask will I be called back to ENT for results or moved onto Oncology ?

Turi

  • Hi Turi, sorry about your wait, it is the absolute worsed part of the process, depends normally on your prognosis and whether surgery or Chemo/Radiotherapy is involved
    Please also you may have another wait whilst they decide and plan the treatment, you don't mention what cancer you have but if you come back someone who has had your problem will most likely add to the post, just wanted to keep you up top for info

    Take Care and hope your wait isn't too much longer

    Tony

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  • Hang in there Turi, the waiting is horrible I know. Try to distract yourself with mindless TV or seeing friends, maybe treat yourself to some nice food, and get out for a walk if you can.  Good luck! 

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Oct 2024 nearly 2 years all clear. See my profile for longer story

  • Hi Catriona,

    I will take your advice.I think living by myself is giving me too much time to think about things.Longer walks with the dogs from tomorrow.

    Turi

  • Having a really bad day.The waiting for results isn't getting easier.Can I ask will I be called back to ENT for results or moved onto Oncology ?

    It's three weeks since your Biopsy was done. They take two weeks then a panel of doctors and support clinicians called a Multi Disciplinary Team( MDT) meet to discuss every patient in their care together. They usually meet once a week. These meetings do not involve the patient but there are moves afoot to organise mini MDTs to involve patients in their treatment process. This can only be a good thing....but nobody yet is implementing it

    I would give your ENT consultant's secretary a ring to chase your appointment up

    I was referred initially to Maxillofacial rather than ENT (I have no idea why...my Gp's error maybe)

    I got my results from the consultant I was referred to, Maxfac, but also present was the oncologist who was to treat me and a Macmillan nurse

    Generally ENT and Oncologists take clinics together on the same day in cancer care so they are both around should they need to confer

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Turi the waiting’s is the worst part once a plan is in place everything falls into plsce. I got a phone call from ent telling me to go ti Leeds cancer centre but I already knew my cancer was in tonsil as ent surgeon came to see me after biopsy. 
    Hazel z

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/