Hi Everyone
Apologies its my first post on here, although I have been reading others, which have been very informative. My husband is in week 6 of treatment for tonsil cancer with lymph node involvement. Has been struggling with nutrition for the last 3 weeks, managing on Fortisips mainly and has been largely maintaining weight. However last few days he's really struggling due to increased mucous. He's been told he can have a naso gastric tube,which is fine, but we note everyone else seems to have had a PEG or RIG inserted earlier in the regime. Has anyone else had an NG later on in treatment?
Thank you for any info. Best wishes, Liz
Hi Liz Yes I had ng tube fitted towards the end if week 3 it was my lifesaver it enabled me to complete treatment and then aid recovery without stressing about food hydration or medication going down my heavily radiated throat. I i had 7 weeks radiotherapy and my tube was in until week 3 of recovery. I do credit the tube in helping me recover fairly speedily it took the stress away. I always knew if I needed a tube it woukd be ng as for trust did not routinely fit peg or rigs, My advise is to have it put in. It’s very rare for a peg to be fitted this late in treatment it’s more often fitted prior to treatment starting. The procedure for fitting the tube is a few moments discomfort ,any advise just ask.
I too had mine as I couldn’t swallow but I did also have a lot of mucus and was prescribed carbusistine,my swallow was too painful as a Dani says
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Has anyone else had an NG later on in treatment?
Yes me but it was because I couldn’t swallow with the pain. Much easier than a PEG or RIG at this stage as they are both invasive.
If your husband has little pain and it’s just the stickiness then try a nebuliser or steaming over hot water with a towel round his head. Drinking lots of water or diet ginger ale or coke or soda water can thin it down. There is a drug called carbocysteine you can get on prescription that thins the mucous.
Hope you get an answer soon
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Thanks Hazel. We will ask about carbocystine too.
Hopefully the tube will get round this.
It will. Ask about pump feeding too. I fed slowly by pump through the night so that I had the whole day free to do all the other stuff and still have some time to be me. It worked a treat
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
I had an NG tube fitted just after treatment ended, it was a lifesaver and worked really well with slow overnight pump feeding. I couldn't stand Fortisips - never did like sweet milky things!
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Oct 2024 nearly 2 years all clear. See my profile for longer story
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