Hi Everyone
Apologies its my first post on here, although I have been reading others, which have been very informative. My husband is in week 6 of treatment for tonsil cancer with lymph node involvement. Has been struggling with nutrition for the last 3 weeks, managing on Fortisips mainly and has been largely maintaining weight. However last few days he's really struggling due to increased mucous. He's been told he can have a naso gastric tube,which is fine, but we note everyone else seems to have had a PEG or RIG inserted earlier in the regime. Has anyone else had an NG later on in treatment?
Thank you for any info. Best wishes, Liz
Hi Liz Yes I had ng tube fitted towards the end if week 3 it was my lifesaver it enabled me to complete treatment and then aid recovery without stressing about food hydration or medication going down my heavily radiated throat. I i had 7 weeks radiotherapy and my tube was in until week 3 of recovery. I do credit the tube in helping me recover fairly speedily it took the stress away. I always knew if I needed a tube it woukd be ng as for trust did not routinely fit peg or rigs, My advise is to have it put in. It’s very rare for a peg to be fitted this late in treatment it’s more often fitted prior to treatment starting. The procedure for fitting the tube is a few moments discomfort ,any advise just ask.
I too had mine as I couldn’t swallow but I did also have a lot of mucus and was prescribed carbusistine,my swallow was too painful as a Dani says
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Has anyone else had an NG later on in treatment?
Yes me but it was because I couldn’t swallow with the pain. Much easier than a PEG or RIG at this stage as they are both invasive.
If your husband has little pain and it’s just the stickiness then try a nebuliser or steaming over hot water with a towel round his head. Drinking lots of water or diet ginger ale or coke or soda water can thin it down. There is a drug called carbocysteine you can get on prescription that thins the mucous.
Hope you get an answer soon
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thanks Hazel. We will ask about carbocystine too.
Hopefully the tube will get round this.
It will. Ask about pump feeding too. I fed slowly by pump through the night so that I had the whole day free to do all the other stuff and still have some time to be me. It worked a treat
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I had an NG tube fitted just after treatment ended, it was a lifesaver and worked really well with slow overnight pump feeding. I couldn't stand Fortisips - never did like sweet milky things!
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story
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