Hi,
I was treated in summer 2020 for a large, HPV driven, base of tongue/tonsil tumor. Whilst I also had bilateral lymph node involvement and a delay in getting to a diagnosis, due to the pandemic. I had a really good response to 6 weeks of chemoradiation and all scans/scopes have been clear for 3 years.
unfortunately despite the hospital saying it was really unlikely/ rare for an HPV tumor to spread distantly, this is the situation I find myself in. I start chemotherapy next week or so.
Thankfully I know most people are cured after their first treatment but if anyone else has had a distant recurrence of an HPV driventumor & also wondered what treatment anyone else has through.
many thanks for reading,
stay well,
I’ll echo Hazel. Get a second opinion as to whether you are eligible for any trials. There are a few. I know somebody who started off here on the forum and was offered only chemotherapy and it failed.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi, yes I’ve had a reoccurrence with mets to the lungs.. I’d been clear nearly two years. I’m now on a clinical trial along with immunotherapy at the RMH. The clinical trial that includes a vacci
that targets HPV driven cancers. I’m about to have my third round but obviously have no idea if it’s working yet, will only know after my scan. That said, there is always hope
