Hello Again Everyone,
I went for my 3-monthly check-up today with Dr Casasola at Ninewells and he stated that he was happy with my ongoing situation. When he asked about my eating habits, I had to say that they were nowhere near back to any sort of normality. | said that the Oral Medication had referred me to ENT for a Swallow Test and the Speech & Language Therapist said that she could do this right away if I wanted to and I agreed.
It was not what I expected at all, I thought it would be by x-ray, but it was done with a nasal endoscope; which really was not as bad as I thought. Apart from some drier foods (biscuits) hanging around the epiglotis, everything was good. I explained that some 'bits' of food, or debris, sometimes lodged at the epiglotis and this caused me some discomfort with coughing that sometimes induced vomitting to clear the blockage - this can sometime be alarming due to being in a near choking mode. The Speech & Language Therapist did say that there was still some swelling and rawness in the area treated by RT.
I still can only manage a small portion of meats, even with lots of gravy and drinks, but I will keep trying.
Anyway, my next procedure is in two days time for cataract surgery on 1st June.
On the recommendation of the S&L Therapist, I had a quick look at an alternative forum - The Swallows Head & Neck Cancer Support Group - https://theswallows.org.uk - anyone have any knowledge of them at all?
Onwards & Upwards,
Take Care,
Bob Turner
On the recommendation of the S&L Therapist, I had a quick look at an alternative forum - The Swallows Head & Neck Cancer Support Group - https://theswallows.org.uk - anyone have any knowledge of them at all?
Yes...run by Chris Curtis, a HNC survivor, and his wife Sharon. They have a 24/7 hotline where you get to talk to a real person.
They do great work. Chris is very active and has a well deserved gong for his work. Chris himself was PEG fed for some years
They send out really marvellous support boxes with all sorts of mouth goodies
I don't find the forum at al easy to navigate though
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
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