One Year Out of Treatment

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Hello All 

Just thought I’d let you know how I’m doing now post 1 year out, well it’s going really well tbh . No major issues apart from still being chained to the water bottle to eat . Mouth seems more moist during the day now which is a relief tbh, eating most foods apart from really hot and spicy stuff which I do miss but hey that’s a small price. I’m back to work full time although occ healt have said I must be accompanied when on the track and no night shifts at least till October .But yeah alls good and I hope it remains that way for us all . 

regards

Gary

  • Hi Gary good to hear you are doing so well, things will improve even more as time goes on, so give it time and hopefully you'll be back to spicy food again.

    Regards Ray.

  • Cheers Ray , there’s a lamb madras with my name on it I can tell you !

  • Hi Gary well done  one year  out us an occasion worth marking. Hope spicy returns for you sadly hasn’t for me. I just use aromatics instead coconut cumin coriander I csn do. You’ve lots if time keft for thjngs to change. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Gary. Good news. 
    I can manage some spicy. Just experiment in another year. I can eat hot but it has to be the right kind which hits my mouth nicely but not my throat. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Gary,

    Happy to read your post. Great news and wishing you all health… 

    hopefully, taste bods will come back and you will enjoy spicy food soon. I am 9 months post treatment and can eat all food, even bit spicy.

    good luck x

    marta 

  • Hello all , just been for my six weekly with everything all ok . My specialist advised me that because now I’m a year out of treatment I have to go for an MRI . He told me that because I had no known primary thats the next step to make sure I’m all clear . Has anyone else done this before? Ah well roll on the scanxiety Stuck out tongue winking eyeSlight smile

  • Has anyone else done this before?

    Not me but I think it’s fairly standard if your primary wasn’t found. Will they offer you yearly scans? Worth asking. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Brilliant news Gary! Thank you for checking in - good to hear 

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story