Update on hubbys treatment

Thank you MarkEl  

Thank you Hazel  

Hi Paula, it's good your husband is doing so well, after his surgery. As for a PEG, I would say to have that before his treatment starts, I had a RIG fitted, which I was100% reliant on from week 3, the way I look at it is, it's best to have it and not need it, than need it and not have it. They really do take the worry out of not eating during and after treatment. 

Regards Ray. 

Thank you Ray  

I was pencilled in for a Ng at week three , but I was still getting my calories in so I managed to avoid it . 

Thank you everyone for your advice - the dietician called this afternoon and explained the procedure and recommended having it done before treatment starts.

We should be getting an appointment in the next 2 weeks.

Paula

Hi Good treat ut like an insurance policy you hope you never need it but it’s there ready in case you  do. Best advise if he needs to use it tell him it’s not a sign if weakness,his body  will takes a battering so use it.

Hazel x

Thank you Hazel  

Zooki said:

We should be getting an appointment in the next 2 weeks

If you’re going to go for PEG best done before treatment. It takes a week or so to settle and you don’t t really want all that on top of the chemoradiation 

Hi Paula 

My husband had a peg fitted and although at the time he was feeling over whelmed with scans and teeth out, peg fitted. It has been a huge positive. To beable to choose to stop forcing food down a very sore throat was a blessing. 

I don't think having this procedure during rt treatment say I week 3/4 would be ideal at all. Added stress. 

It took 15 mins, sore for a few days but my husband got used to it quickly and uses it for all food..  he still is managing to swallow water and meds.. it has helped so much with lower levels of weight loss.  Last week in week 4 he only lost 0.3kg  due to 2,500 calories a day of the protein shakes provided by the NHS.   

This is just our experience but we can only recommend a peg..

Gail xx