Loosing confidence by the day.

Hi Mintcske.
Sorry you have found yourself in this position.  The wait won’t hopefully have a detrimental effect in the treatment but it’s no help to you. If it helps it’s a tried  and trusted process expect if there are any concerns re teeth in the future. It’s far better to have the extraction s now as major issues can occur later.  Again no help to yoh. As for the feeding tube I had n g tube fitted week 3 it was my lifesaver. Once treatment does start you need to be on a position to hydrate and get meds plus go into you. All I can do is send you a hug. Please keep in touch we will all try to help. 
Ad for the trial again they have strict protocols again I understand your anger. 
Hugs Hazel. 

Many Thanks, major wobble today, sure there is more to come. 

Mintcake said:

 If I hadn’t participated in Pathos and gone straight to Chemo and RT, I would have finished treatment by now. 

Hi Mintcake. What you say is true but you had a chance to have less radiotherapy and fewer long term side effects. Sadly it wasn’t to be. 
Dont be disheartened. There is a well trodden protocol and your new team are just following it. A few weeks won’t make any difference. 
After diagnosis I had to wait three months before there was room for me in treatment. Four years later I’m fit and well

I too had plenty of wobbles. It’s what happens when you are no longer in control of anything. 
Hang on Mintcake. 

Hi Mintcake. I do feel for you. I too was hoping to go down the reduced RT path when I joined Pathos. So I was bitterly disappointed when I was advised to have both the full 67 Grays plus chemo because the bottom margin of my excision had been ‘a bit tight’ - due to its being so close to my carotid artery. I also had my adjuvant treatment delayed, which was a bit scary, but I was reassured it was all still within established limits. However, now I’ve had the full treatment I’m so pleased I did because although it was hard going I’m in no doubt now that they did all that they possibly could to cure me, and over 2 years on I’m living life to the full again with just one or two minor inconveniences. Thinking of you at this very difficult time. But hunker down, get as fit as you can and get some calories down you (easier said, I know) and chances are that in time this will be just an unpleasant memory. 

Hi Ken(dal) and apologies for my poor attempt at a pun!

I had some of the opposite experience whereby they could not decide to remove teeth as part of surgery (didn't happen) and then prior to rt (didn't happen because left too late apparently) so I may have swapped short term hassle for long term risk, who knows?!? I also was down for a pipe but to shortages of humans and pipes, went through it all on "manual" so to speak. In hindsight, I think the pipe may have reduced the battles somewhat. 

Keep your chin up (I have no choice due to bloody lymphedema) and always happy to have a chat.

Update to yesterdays post. 
min for the Feeding rig fit today. In Theatre lol prepped, painkillers and anaesthetic administered, pipe thru nose to stomach ( not fun ) when the consultant pulls it !! 
My bowel is to close to my stomach so not safe to go ahead. 
had a CT scan last week to show just that, but apparently it moved since then.  
Now I’m back in the ward 12 hours in and no idea what happens next ? 

Mintcake said:

Now I’m back in the ward 12 hours in and no idea what happens next ? 

I had an NG tube for 8 weeks and managed ok. Perhaps they can offer you that?

Hi Kendal like Dani I had a ng tube fitted week 3 ehrn I needed it and was in 6 weeks  ask if that’s an option for you. 

Hazel x

Thanks, I’ll ask in the morning. 

Hospital Day 3. Going for another CT Scan with inflated stomach to have another look at wether it’s possible to fit the rig ? If not, surgery is the plan b. Looks like my treatment start will be postponed again.