PEG insertion

Hi Peter Eagle, it's good you have had a peg fitted, it will take the worry out of not eating, if it becomes difficult, during your treatment. I had a RIG which is similar to a PEG. It will take a few days to settle, and you will soon get used to it. Don't hesitate to use it if you feel eating is becoming to difficult. Mine was a lifesaver for me. Any questions just ask on here, we are all happy to help if we can. All the best with your treatment.

Regards Ray.   

Hi. I had a PEG & it was a lifesaver. It takes a few days for the site to settle. After a week the nurse came & released the clamp so it was a lot more comfortable. Yes, lots of aftercare info but it soon becomes just another part of your daily routine. I used mine from week 4 for hydration, meds & overnight feeds via a small pump. 

Hi Peter

I'm going in on the 26th to have a PEG fitted.

I've had an Ng Tube for around 4mths now, due to not being able to eat and just relying on a liquid diet and nightly feeds via the pump.  Then I can only manage very small amounts of fliuds at a time orally, so practicly everything goes down it.

So i'll keep an eye on your thread if that's ok.

cat x

Hi Cat

Best of luck with the PEG insertion...procedure was not as daunting as expected... which was a relief.

Tenderness is settling down...soluble paracetamol is helping...trying to find a comfortable sleeping position can be  challenging....

Peter

I used to tape the pipe down on my RIG, it stops it from moving around and getting in the way.

Thanks Peter

I am on fairly high pain relief anyway so i should imagine that will help with the sorness. 

I did wonder how it was secured down old biker, 

Also do either of you, or anyone else that maybe reading this, know anything about Gas Marrow ? As i'm having that. I've tried looking it up, as you do !! but all it comes up with is either marrow in the bones or cronic wind ... Not very helpfull !!

The only thing i am a little worried about is that all my pain meds go down my NG and they are removing that the night before fittting my PEG and i take pain relief twice during the night and obviuosly first thing in the morning. I'm hoping they put a canular in and i have them that way. 

Cat x

Hi, Cat, I can't help with Gas Marrow, I've never heard of it. As for your overnight pain meds, I'm sure they will make sure you are able to take them.

Ray. 

Catmarel said:

Also do either of you, or anyone else that maybe reading this, know anything about Gas Marrow ? As i'm having that. I've tried looking it up, as you do !! but all it comes up with is either marrow in the bones or cronic wind

Nope. Sorry. In what context?     Could you have misheard?  

Catmarel said:

The only thing i am a little worried about is that all my pain meds go down my NG and they are removing that the night before fittting my PEG and i take pain relief twice during the night and obviuosly first thing in the morning. I'm hoping they put a canular in and i have them that way. 

What I would do is insist on that cannula placement before they touch your NG tube and make absolutely sure the duty doctor has written up your analgesia. The nurses won't give it otherwise. Been there and done it. Waiting for pain relief in hospital is the pits. I always advise folk to take their own but you can't if you have no NG tube. 

Hope it goes OK

Sorry,

i should have elaborated a bit more !! As i understand it, I have to drink this Gas Marrow, then they take me to Radiology, the marrow will 'glow' and that's how they are sitting my Peg. As appossed to having the camera down my throat to site it..

I will make sure i have my meds one way or another !! i've been in so much unbarable pain the last two months and then the really bad bleed. They sorted me some more pain relief and now I'm finally more or less pain free, so i'm not having that again even for a day or so.  If i'm not able to have it as and when needed they are going to know i'm there   

Cat x