Following a Fluroscopy some weeks back I was referred by ENT for another Throat and neck MRI. I have had to chase around for a week to get them results! 'No reoccurrence or significant change' but we need to see you 'as a matter of urgency' no appointment given! So more chasing them up. I'm concerned that I have seen posts on here giving people the 'all clear' and then they are told something different.
I have now lost over 3 stone, I am under SALT team who can't do anything until they have MRI results. They suggested that I don't 'eat' because of the swallowing issue which could result in a serious choking and aspiration problem. I am now 5 months post treatment, have 6 week checks and an MRI scan. Haven't had a blood test for at least 3 months. To be honest I am becoming really frightened by all this. Can I trust these results??? They keep saying its 'early days' and despite a fair amount of progress the fact I am unable to eat beyond a weetabix is scaring the life out me. I have no energy, no muscle, no stamina and am absolutely exhausted. Despite the "I want to be 9 stone dream" that I now am, I absolutely shocking.
I cannot seem to be able to contact my Macmillan nurse, she is incredibly busy, but it's unusual. Be interested to hear your experiences. Hoping you are getting on.
Pauline
