3 months since finishing treatment, PET scan clear - I'm so relieved

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15/2/23 my first 3-month review appointment.  It was a young doctor I hadn't met before - I've only seen my consultant twice. He said my PET scan was clear and I've had "complete response" to treatment. I know they don't say "cured" because there's quite a high chance of recurrence, but when pushed he said the tumour is gone - wonderful news. I'm so relieved!  I'll try not to be anxious about recurrence, keep up my swallowing exercises and make sure to attend follow-up appointments.  And plan a lovely holiday with my partner who has been such an amazing support through all this. 

Thank you everyone for your support on here! It's been a really tough 6 months but I feel very lucky to have this outcome. 

Love, Catriona

(September 2022 HPV associated SCC base of tongue T4 N2 M0, treated with 6 weeks chemoradiotherapy ending Nov 2022)

  • Hi Catriona, I’m so pleased for you. It’s a long road we have all travelled. Go on and get on with life. Pop back and say hello on your first anniversary. Hug. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you!  I will do Fingers crossed

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story

  • That's great news, hope you have a lovely holiday.

    Regards Ray.

  • Hi Catriona. Brill news. Onwards and upwards from here. One life live it. 
    hugs Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • I know they don't say "cured" because there's quite a high chance of recurrence

    The rate of recurrence is actually quite low Catriona, it's obviously sensible to be aware of the possibility but it's very much the exception rather than the rule in H&N patients.

    Keep going to your checks and report anything that worries you for sure, but don't waste your life worrying about something that's probably not going to happen.

    Have a great holiday!

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Congratulations great news! Enjoy life Wink 

    love Marta x

  • Glad I read down to your message Mike. I am halfway through my treatment and already thinking if I get a good result how do I stop worrying about reoccurrence. 

  • Hi Alan I’m almost 5 years. I’m lucky I’ve never worried about reoccurrence s I trusted the team, the treatment and my fantastic oncologist. I did everything I could to help my self I learnt to listen to my body  radiation fatigue is debilitating if you’re tired in recovery don’t  fight it   Take care you get  enough hydration and nutrition even if it’s hard. Take a  walk every day if you can snd go to every  check up. 
    Dont waste time worrying about the what ifs concentrate on the here  snd now. Head and neck cancers respond well to treatment we’re lucky do enjoy each day I do. 
    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis.