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What happened overnight

Durhamlady
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What a difference 12 hours can make, had my 2week review yesterday and felt okay but a few hours later it was becoming quite painful to swallow. Overnight it has gradually got worse and now it feels as if my throat is swollen, I suppose this is the start of what is to come xx

Lillian

  • Hi Lillian. Remember your  pegs there so use it. Nutrition snd hydration is vital these next few weeks. Sadly yes you’re in track I was day 20 when bam everything  changed. Take it one day at a time you’ll get there. Hugs Hazel xx 

    keep on top of medication take it by rote don’t wait for pain once it starts keep taking the medication. It will be snd is week 6 before uou know it. X

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Yep. That’s the way it goes but don’t panic. You’re prepared. Make a list of the pain meds you’re taking and when. Take them by the clock and tick them off. Don’t wait for pain. When my pain got significant I took my analgesics every two hours, paracetamol alternating with oromorph. When the background pain got too nasty to ignore I had long acting morphine twice a day. It really worked and I was comfortable, if a little sleepy, through treatment. 
    Lilian, if the meds aren’t working don’t suffer, tell your radiographers. 
    Keep going 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • in reply to Beesuit

    At the moment the only painkillers I have is paracetamol, who do I ask for stronger ones? xx

    I have had a cold for 2 weeks and the last couple of days I have been running a fever and temperature. 
    I am taking soluble paracetamol but I am struggling to get even yogurt and semolina down. 
    I know that it will have to run its course but I have lost weight and I am concerned that if it doesn’t go away I will lose even more weight. I am literally drained and so weak and  I would be grateful for any advice. 

    Thankyou Lillian xx 

  • in reply to RadioactiveRaz

    I am going to start using my peg soon Hazel although I was hoping not to have to. I was shocked how quickly it came on x

    I have had a cold for 2 weeks and the last couple of days I have been running a fever and temperature. 
    I am taking soluble paracetamol but I am struggling to get even yogurt and semolina down. 
    I know that it will have to run its course but I have lost weight and I am concerned that if it doesn’t go away I will lose even more weight. I am literally drained and so weak and  I would be grateful for any advice. 

    Thankyou Lillian xx 

  • in reply to Durhamlady

    Hi Lillian the pegs thee for that reason. Medication ask the radiotherapy team they shoujd put you in contact with nurse. I was on 30 mg co codomol while I coujd swallow tgrm i git soluble ones to go into tube. Eventually ended up on oramorph. As dsni says when you start on pain don’t suffer. 
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • in reply to Beesuit

    I have been given Oramorph but the paracetamol don’t seem to be strong enough. I am only in the middle of week 3, does the pain continue to worsen or does it plateau? I feel like such a complainer but through the night and mornings are the worst. Even drinking water is painful xx

    Lillian 

    I have had a cold for 2 weeks and the last couple of days I have been running a fever and temperature. 
    I am taking soluble paracetamol but I am struggling to get even yogurt and semolina down. 
    I know that it will have to run its course but I have lost weight and I am concerned that if it doesn’t go away I will lose even more weight. I am literally drained and so weak and  I would be grateful for any advice. 

    Thankyou Lillian xx 

  • in reply to Durhamlady

    Hi. For me the pain got worse & from week 4 I was on paracetamol then added in codeine & by week 6 was on morphine too. I had all meds in liquid form via the PEG from week 4. Plus overnight feeds via a pump & PEG. 

  • in reply to Durhamlady

    Hi Lillian the pain can plateau out around week 4-5 but does continue for a good few weeks afterwards. Can yiu ask for co codomol or maybe MST which is a long lasting oramorph or even fentanyl patches. Just make sure you take laxido or movicol daily. The treatments brutal but remember the results are worth it. 
    hugs Hazel 

    ps water try bottled water or if even resorted to water bring warmed in microwave for 15 seconds so I coukd drink. Often tap water  even tastes now like bleach so I have a filter. If you live in a hard water area that won’t help. Xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • in reply to RadioactiveRaz

    I only drink bottled water Hazel but it doesn’t taste like water anymore. 

    I have had a cold for 2 weeks and the last couple of days I have been running a fever and temperature. 
    I am taking soluble paracetamol but I am struggling to get even yogurt and semolina down. 
    I know that it will have to run its course but I have lost weight and I am concerned that if it doesn’t go away I will lose even more weight. I am literally drained and so weak and  I would be grateful for any advice. 

    Thankyou Lillian xx 

  • in reply to RadioactiveRaz

    I can’t believe the change of everything in the space of a week. My mouth is so dry and I can’t even drink much to ease it, I’m a big moaner really but I didn’t think it would get so bad so soon. Time to put my big girl pants on I think. Thank you so much everyone for your support xxx

    Lillian 

    I have had a cold for 2 weeks and the last couple of days I have been running a fever and temperature. 
    I am taking soluble paracetamol but I am struggling to get even yogurt and semolina down. 
    I know that it will have to run its course but I have lost weight and I am concerned that if it doesn’t go away I will lose even more weight. I am literally drained and so weak and  I would be grateful for any advice. 

    Thankyou Lillian xx 

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