P16 positive tonsil cancer

Hi Seashell

you are not alone.  This group is very friendly and reassuring.  It’s the side effects that are so challenging aren’t they. I have dry mouth, Lhermitte’s sign when I look down snd ongoing tiredness at the moment     Good things are that my mouth has healed and I can eat lots of different things albeit slowly. Sometimes I find it hard to be positive.  Wishing you all the best. 
lizzie

Hi SeeshellS and welcome. Yes we take a real pounding and it takes a while to recover. I'm three years on and fairly normal, though I still reckon I get minor improvements My mouth is drier than it was but manageable and I can eat almost everything that I enjoyed before I was ill. I have avoided any thyroid damage but I do have to mitigate reflux if I'm not careful. I still do my jaw exercises to avoid trismus.

You will get there, it's not a race. Keep well 

How true Seashell. I’m now 14 months post-treatment and still have to do neck exercises and massage with bio oil twice a day. It’s always a bit stiff and tender and often feels sore. I also suffer from reduced saliva but that is manageable with having a drink nearby when I eat. Odd aches and pains and little lumps and bumps seem to appear and disappear quite regularly, but I am now better at keeping these in perspective. However, overall things are very slowly getting better. Patience is the watchword!  Like you, I thank heaven for this forum. If it weren’t for the people in here I’d feel very alone in all of this and worry myself stupid. Onwards and upwards eh? 

Hi See she’ll  I am .3 5 years post radiotherapy. It is early days for you like Dani  I am still getting small  improvements treat it all like a marathon  not a sprint listen to your  body. Radiation fatigue can linger. Look at my blog it may help you understand how we progress. There’s links in there as well 

Hazel x

Hi SeeshellS and welcome to the group. 

Yes, side effects!  I was forewarned about some of them but discovered a lot for myself.  I also didn't realise at the beginning quite how long they would go on for.  It was one of the speech and language team who informed me that I woud probably experience them for 18-24 months although I would see improvements in that time.

I'm sure you'll find you continue to improve but do pace yourself and as Mark says, patience is key.

You'll find lots of support and advice here if you need it.

Take care.

Linda x 

Thank you so much for your reply. Sorry it's taken me a while to reply but I've had trouble actually login into the forum.  Happy to say I'm feeling stronger at moment. Took everyone's comment about taking things slowly.  Neck pain and mouth discomfort still with me but coping!!!  thank you again 

Thank you for your answer sorry it's take me awhile to reply but I've had trouble login into the forum.  Feeling stable at the moment.  Trying to keep everything in prospective and not being impatient.   

Hello, sorry I've take a while to reply I've had trouble in login into the forum. Must admit do feel isolated but it really helps reading everyone's comments.   Trying to keep everything in prospective and yes keeping up with all excercises,  stretching and massaging that's been suggested.  It still surprises me how each day can be different!!   thank you again for the support.  

Thank you for your reply and sorry I've been slow in responding but had trouble login into the forum again!!  I'm feeling more positive at the moment although each day varies so much.  just taking one day at a time.  So good to know I can chat on here. Take care 

Thank you for your reply and sorry I've not responded soon but I've had trouble in login into the forum!!!  all the encouragement I've had it great. So good to know concerns here. It certainly helps.  Trying to keep everything in prospective and at the moment feeling positive.   Still have neck discomfort and mouth is very sore.  Still find it strange that I can feel not to bad one day then the next in so much discomfort!!!  But keep going forward.  Take care.