Lymph Nodes

With regard to the swelling, I had a neck dissection in May and have had swelling to neck and face on that side. Some was post-operative, but now that has gradually receded I still get some puffiness/swelling which is lymphedema related to the removal of lymph nodes and, as far as I gather, this is not uncommon.

Once all scars have healed enough, a bit of gentle massage helps in reducing the swelling and getting any fluid to re-route to the lymphatic system.

Wishing your son all the best with his recovery.

Hi Jamet. At this stage it’s often 2 steps forward i and one step  back. It’s possible that your son has developed lymphedema gentle massage can help. I would suggest he contacts his cancer nurse as well many hospital s have their own clinics. If you look at Danis blog  she has a video showing how she massaged her lymphedema, it may help . Hope he gets the infection sorted. As forvChristmas  dinner if he can’t eat at least  he will be able to sit around  table with all if you and maybe try a small,portion. There’s always next year.

Hazel

Thanks for the reply, it's good to know that it's not uncommon for this to happen.  It's difficult when you don't know what to expect.

Thanks for all your encouragement, it certainly helps.

Janet x

Hi Janet,

I didn't have surgery but do get swelling. Dani's massage & exercises help keep it at bay. My PEG stoma got infected, antibiotics and antibitic cream helped fix it. I also used barrier cream after showering to help prevent it getting sore. Warm soapy water best way to keep it clean once infection sorted. Hope it can be sorted soon. 

Sending you all my best, Ronnie 

Hi Janet.

Yes it does sound like lymphedema which is quite common.

I agree with Hazel to contact the Cliical Nurse to see if they have a lymphedema clinic.  I think I would want some professional input before he starts any sort of massage himself in view of his surgery etc.

Hope he can get the infection sorted quickly and by the way, you don't ramble!!!  

Linda x

Agree with LindaWT

Get a professional opinion on the lymphodema. Although my video is useful it’s for uncomplicated turkey wobble. I didn’t have any surgery. 

Hi Janet,

Good point from Dani & Linda. I didn't have surgery, he needs to check first. 

Thanks everyone for your helpful replies.  My son has a follow up appointment on 16 November, hopefully the hospital will be able to sort it out.  He now has cream for around his stoma, he think maybe he didn't try the area properly after his daily shower.  

Thanks again, really appreciate your feedback

Janet x

Ha ha, thanks Linda, I do try not to ramble on !!  He has a follow up appointment on 16 November so hopefully the hospital can sort this out for him.

I appreciate all your feedback

Thanks again

Janet

x